MIRENA IUD RUINED MY LIFE — a public service announcement.

DISCLAIMER: I’m taking a small detour from my normal blog content to do the Internet a favor. When I got my Mirena IUD in September, I didn’t do enough research. The only “research” I did was read the pamphlet my OB gave me. Big mistake. The eight weeks I had the Mirena IUD were the worst in my life and I’m blogging about it, hoping that when poor, unsuspecting women (who are smarter than I was) Google Mirena IUD, my blog will come up and they can save themselves from the hell I went through.

Also, at the mercy of search engine optimization, I’m going to refer to Mirena IUD by its name on every mention so that it will (hopefully) come up high in Google searches and not be buried by other stuff.

Okay. Here’s how Mirena IUD ruined my life.

After I had my son, my OB suggested I get the Mirena IUD inserted because it was one of the only birth controls I could take and still breastfeed. The Mirena IUD is a device that is inserted into the uterus that pumps out a constant, low-dose of hormones that prevent pregnancy but allow you to breastfeed.

A couple days after I had the Mirena IUD inserted, I started losing sleep. At first, it was only that when my baby woke me up in the middle of the night, I couldn’t fall back asleep. But after a couple days, I found myself immersed in full-blown insomnia. I couldn’t fall asleep at night without ingesting huge, unholy amounts of Benadryl and, even at that point, I could only sleep for an hour or two at most. (Yes, I am still breastfeeding. I called my pediatrician concerned about this — they told me that Benadryl was safe. So was Ambien.)

Then, I started having really horrible anxiety. A panic attack here and there. Really scary stuff. The insomnia and anxiety worked hand in hand, too.

After about a week of this, I went to see my primary care doctor. I hadn’t slept in a week and was beside myself upset. The doctor I saw (wasn’t my actual primary care doctor — she was out that day) attributed this to postpartum depression and gave me a prescription for Ambien and referred me to a counselor.

The Ambien worked for a day or two, but after that, I had to start taking more than one, sometimes three in a night to sleep. This was so dangerous. A few times, I had to have my husband drive me to work in the morning because the drug was still in my system. There are days — ENTIRE DAYS, PEOPLE — I don’t even remember. One day (sorry if this is TMI) my husband and I evidently engaged in — uh — married people activities that I HAVE NO MEMORY OF. Finding this out scared the everloving hell out of me and was the last straw.

Then it hit me — these symptoms had only shown up when I got my Mirena IUD inserted. I knew in my gut that Mirena IUD was the problem and I decided that I needed to get the Mirena IUD removed ASAP.

I went back to my primary care doctor even more upset about this, convinced it was the Mirena IUD. Because she did not insert the Mirena IUD, she didn’t want to remove the Mirena IUD. (Again, sorry for the repetition but I’m hoping this gets my blog a lot of hits from search engines.) What she did do was text her OB friend to find out what antidepressants were okay to take while nursing and, after hearing back from two of them, prescribed me Zoloft.

So, at this point, I was taking Ambien, Zoloft, AND Benadryl to try my damnedest to get some freaking sleep. But it still wasn’t working. All of these medications were prescribed to me because I wanted to keep breastfeeding but I didn’t feel comfortable taking so many freaking medications WHILE I WAS BREASTFEEDING.

OMG. The deeper I get into my story the angrier I become.

I did not relent. I knew in my soul that the Mirena IUD was the cause of all the insomnia. So I kept calling my doctor and my OB’s office to get some answers. But everyone shrugged me off, saying it was just postpartum depression and that I should feel good about the fact that I was “treating it”.


A couple weeks went on and then one day, the anxiety got so bad. I had the worst panic attack of my life. I was shaking so hard and couldn’t breathe. My husband had to dress me. He had to feed me. All the while, my baby boy is laying there, crying, and I couldn’t even care.

I am not making this up. Ask him about it. It was bizarre and scary and horrible.

I was sick of not being taken seriously by the doctors. I was sick of being told this was postpartum depression. I know myself and I know my body and I know that what I was going through was because there was this foreign object inside of me pumping me full of crazy hormones and I was not going to stop until I was heard and the Mirena IUD was removed.

Finally, it came to the point where I had to lie on the phone to my OB’s office and tell them that I had thoughts about hurting myself and my child.

Magically, their “blocked out, totally full” schedule had an opening with another OB in an hour.  Funny how that works out.

When the OB walked into my exam room, he greeted me the way I’d been referred to by all these doctors over the past weeks.

“Got them postpartum blues, eh?” (He’s from Georgia.)

“NO,” I literally yelled at him. My voice scared me so I backed off a little. “Okay. Well. Maybe. But I don’t think so. I really think that my Mirena IUD is causing all of this.”

I then told him my whole story. When I was done he looked at me straight in the eye and said the most beautiful words I’ve ever heard spoken.

“No, you’re right. This isn’t postpartum depression at all. PPD would have shown up 2 weeks postpartum at the latest, and you’ve had this only since 8 weeks postpartum, which is exactly when you had that Mirena IUD inserted.”

I exhaled. He went on.

“This is pretty common, actually. The hormones that the Mirena IUD releases into the body are directly linked to depression, anxiety, and the resulting insomnia.”

When he said that, I swear to God, I wanted to punch every doctor, nurse, technician, pharmacist, receptionist, and OB I’d talked to over the previous weeks in the face. Here, finally, a doctor was telling me that what I knew in my heart was right all along AND EVERYONE ELSE JUST ASSUMED I WAS FULL OF CRAP.

“We gotta take that Mirena IUD out immediately,” he said. “Your hormones should level out within two to three days.”

EDIT/UPDATE: After he took the Mirena IUD out, he asked me how my mood/behavior was around my cycle since having the Mirena IUD inserted.

I laughed at him as I recalled YET ANOTHER way the Mirena IUD was ruining my life.

“I’ve been bleeding non stop since the day I got the Mirena IUD,” I told him. “I don’t know what a “cycle” is anymore.”

He looked at me with wide eyes. “Oh,” was all he said after a beat.

Oh yes, I forgot to mention that lovely little detail. I bled, pretty heavily, for eight. weeks. straight.


The night I got the Mirena IUD removed, I didn’t sleep. But I didn’t have any anxiety. The following night I slept a few hours.

The third night, I slept like a f$&king baby. And my bleeding FINALLY stopped a week later.

When I had a follow up appointment with my actual OB she still maintained that what I was experiencing was PPD. She also claims that this is completely “abnormal” and that I am a “special case”.



TWENTY-THREE COMMENTS, the majority of which confirmed my suspicions. Oh and just FYI, if you do a simple Google search for “Mirena” and “insomnia” and “anxiety” you can have a freaking field day.

God, I’m so stupid sometimes.

Here’s the reality.

PMS is a real thing, y’all. So is postpartum depression. Behavioral and mental changes, directly resulted from hormone shifts within the body, are a real thing. It really really really happens. The medical community confirms this.


Dan and I have agreed to keep my body hormone-free from here on out. If the worst thing that happens is that we get pregnant with another beautiful, wonderful, amazing blessing of a child, then so be it. I’d get pregnant a thousand times before I put anything like the Mirena IUD in my body ever again.

[Imagine me dropping my mic and walking away LIKE A BOSS because I am.]


216 thoughts on “MIRENA IUD RUINED MY LIFE — a public service announcement.

  1. oh my darling. I totally get you. I have not been on birth control in 5 years because of the way it messed with my body. I had the Nuva Ring (which my OB basically pushed on me… blabbing about how great it was) and when I went to her complaining about the anxiety is was giving me, the lack of sleep, this feeling of being gross and totally against…naked adult activities she told me that it definitely wasn’t the Ring and was probably problems I was having with my boyfriend. (WHAT?!?!?) Needless to say, I took the ring out and never went to see her again. Later I found tons of discussion boards online full of women having my same problem. I am so glad that you not only figured out your problem, but are not being silent about it. I have known too many women who have had similar experiences with birth control.

    • So I have had my Mirena in for a little over 3 years. I was diagnosed with ADHD as a child but never medicated. After my 3rd child, when I had the Mirena put in, my ADHD symptoms seemed to intensify by 1000x. My doc said that the stress from adding another child to my already crazy life is what caused me to lose control of my ADHD. So he medicated me. While the meds have done wonders for my symptoms I still suffer severely with insomnia. (This is of course common with ADHD and also with the high dosage of meds that I take daily.) A friend mentioned today that she wondered if the insomnia could be due to the Mirena instead of my ADHD and of course I had never even considered it! So now I’m wondering if the lose of control could be due to the Merina as well. I will definitely be talking to my doc about this at my upcoming appointment but in the mean time…has anyone else experienced anything like this? Oh I do not have a period anymore but the cramps are HORRIBLE!

      • Ok. So…I got my Mirena placed 5 years ago, approximately 8 weeks after having my one and only child. I then went back due to some issues with the string a few weeks later and mentioned to my OB that I was having significant memory and focus issues to include extreme fatigue and weight gain. She said it was just from having my daughter and that the Mirena doesn’t put out enough hormones to cause weight gain. As time went on I developed major issues with anxiety, irritation, unstable mood, very little patience, and my face stayed very red (almost like eczema which I had never had an issue with). I also began having issues with stress induced hives. Years later the memory and focus issues began interfering with work so I went to the doctor and was diagnosed with ADHD. (I never had memory issues before or any dx of ADHD) I tried non stimulant meds which didn’t help at all. I accepted that these changes were simply something I would have to deal with and it must have been a change in my body from having my daughter. Early February it came time to have the Mirena removed. Within hours of removal I had energy, the brain fog and memory issues subsided, my face was no longer red, and my patience and even mood has returned. I never connected the issues with the Mirena…but oh how I wish I had it removed far earlier.

      • Progesterone seems to be linked to make adhd worse and the medication for adhd less effective. While estrogen seems to make adhd symptoms better and makes the medication more effective. My daughter and i have had sleep issues the whole time because of the adhd. I’ve been on the Mirena IUD for 7 years or so and my insomnia did not get worse. I can’t tell if my adhd has because of way to many factors like having a baby two people dying being medicated now and much more. I also had post partum depression severly for over a year. I can say though that i dont bleed much a little spotting when i wipe not much more and i get cramps and back pain and tender breast when im on my period not as bad as before the baby and mirena (I got it at 6 weeks post partum so not much time to see which helped. They where horrible before.) And my adhd because drastically worse. Its like a complete fog and confusion state for 4-5 days. I get a period of time during my cycle where its way better. Meds dont work during period and work better during the other

      • I had the mirena 2 years ago after giving birth to my 6th child. I had cramping here and there sometimes got really painful and my belly felt swollen and hard to the touch. I started getting severe mood swings , at times I’d be calm and content, next moment I’m screaming at top of my lungs. I try to exercise, do some situps crunches , squats whatever, and after just a little bit of exercise I’d start cramping and then have breakthrough bleeding. Pain during “bed play” too. I think I could have endometriosis not sure, can’t afford a check up with gyno right now. I can’t lose weight, I’m losing my hair and my mind, I’m so depressed. I was diagnosed with bipolar, ADHD, depression when I was younger and was on meds but only made me worse. I cured myself . Now I want to take the mirena iud out, and get something else but I’m not sure what.

    • The Mirena IUD is awful. I just got mine removed today, and by got it removed, I mean removed it myself because I was so damn sick of the the little bastard fu$&ing with my life!!! I had it for 2 years and my period never became regular. I gained about 40 pounds. I became a raging bitch most of the time. My sex drive totally dropped, which defeated the purpose of even having the IUD. Doctors all act like we are the crazy ones for thinking that the IUD is messing with us. I am convinced it’s all some sort of conspiracy. How many so many woman have these adverse side effects yet all doctors act like its a miracle. No thank you, my man can wrap it up from now on. I’m done with being a guinea pig!

      • Summer68, I actually have those same exact symptoms! Extreme loss of interest in bedroom fun! It’s just soooooo not fun anymore. Hate it . I too am gaining weight. Last 4 pregnancies I had I weighed the exact same…215 when I got pregnant and 216 after pregnant. Wasn’t till I got the mirena 2 years ago that I’ve gained 15 pounds.

    • Thank you so much for posting this comment and for sharing this personal details “this feeling of being gross and totally against…naked adult activities”!! I have had the Mirena in for 2.5 years now and since it’s been inserted my sex drive has been lower. I knew it was the birth control and I knew that was a ‘normal’ side effect but being grossed out and having absolute zero desire to- now that is a little extreme. I thought that was just me and having a hyperactive toddler combined with lack of sleep. I’m so glad I stumbled upon this blog and especially this comment. Thank you!

    • I also had the same experience…except it gets worse. I’ve had mine out for months now and I am still traumatized by the pain. It was the most painful experience in my life getting that put in and I can’t seem to forget it. Sometimes in the middle of the day I will flash back to it and it will jist paralyze me. Sometimes I have nightmares about the insertion and the pain. Sometimes I will just start crying when I get a flash back and remember it. It’s weird because it’s such a strange kind of pain you can’t even reimagine it. I describe it as “feeling the way nails on a chalk board sound”…it was eerie and sharp and the thought of it makes my skin crawl. I wish I could forget the pain and stop having flash backs…I think Mirena LITERALLY traumatized me…will it ever go away?

      • I have 4 kids & my tubes tied. My doctor pushed Mirena on me because the crippling, gut-wrenching cramps I get with my periods have been getting worse and worse…like I can’t even function…she said it should lighten & reduce my pain & flow…possibly ceasing my periods all together. The pain of the IUD insertion was comparable to my reg cramps…which seemed worth it for what the end result I was expecting. Except I was in the ER having it removed 3 days later because of the agony it had put me in already. Reading these horror stories only confirms that I made the right choice.
        She delivered all of my babies.
        I trusted her to guide me down the right path.
        I truly feel betrayed & traumatized.
        I suppose this is what is meant by the doctors bring “in bed” with pharmaceutical companies. 😡😑💔

    • Imagine having a latex allergy and having that ring inserted and having to wait a month to get it removed….

      -And people wonder why I hate doctors.

      • Wow! That must have been horrible.
        It really makes think that the pharmaceutical company’s need to be more diligent in stating side affects, including rare ones.
        I really hope that you are doing better.

  2. Some women are ulstra-sensitive to hormones…birth control pills, replacement hormones, etc. and many doctors treat them as though they are nuts because the symptoms they cause mimic mental disorders. I am glad this has been resolved for you and I am so sorry that you, my son in law and my grandson had to deal with it. God bless you all.

  3. I’m glad you found a Dr to listen to you! Noone knows you better than you! When I went to my Dr after having John I was concerned that the post baby blues as everyone was calling them had become much more! I know my thoughts, my body, my behavior and it’s something I’ve been hyper aware of for yrs. I’m VERY blessed to have all of my Drs being ones who aren’t above listening to my concerns about my health! That’s how a Dr should be with a patient!
    The ambien has one side effect that I’m not crazy about! Engaging in activities and having NO memory of them! I take ambien because of chronic insomnia and can’t tell you how many times I’ve sat here while my husband tells me what I’ve done, eaten, said, posted after taking it! I have NO memory what so ever of these things but have seen the posts the next day or seen wrappers by my bed that I swear I didn’t open.
    I can’t do hormone based birth control because of a blood clotting disorder and because of my mental health issues so I haven’t been on anything for birth control. Due to my current state, my chosen method didn’t work! Who knew after yrs of not being able to get pregnant i’d become super fertile?
    After researching my options and my refusal to get “fixed” I’ve decided that the hormone free paraguard iud is something I will try. I’m hesitant about foreign objects in my body so I don’t know how it’ll go, but I have to do something with this being the 2nd yr in a row I’ve been pregnant!

  4. This is a wonderful resource Lindsay! So many mommy’s are made to feel as though they are crazy, and that’s just not the case. I’m so glad you listened to your intuition and stayed persistent. Thank you again for giving other women experiencing the same thing a voice. xoxoxo

  5. I’ve had Implanon since Nov 2010 and thankfully never had any weird side effects that I’m aware of. The implantation hurt like a b—- and I’m sure the removal will be no picnic (you have to replace it every 3 years) but the only thing is now we’re down to the last year and I went from having 1 period every 3-4 months to having one every other week. Super fun. Probably has something to do with the hormones running out? Anyway I hope everything works out for you! It’s hard to leave a cohesive comment from an iPhone.

  6. Have you ever considered (if you already aren’t) seeing a DO instead of an MD? My experience with them is that they usually have a knack for listening better and looking at your situation as a whole to try to solve what the problem actually is, instead of just prescribing medications to alleviate symptoms. (No offense to any MDs out there…I know not every one is like that.)

    Either way I am glad someone finally listened to you and you’re putting the word out there!

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  8. Thankyou for your story. Mines been in for 4 months. Hair falling out, nausea, depression anxiety and loss of will to live. Hot flushes, no sleep. Severe lower back and cervical pain. Cry all time. Hopelessness. All medics say its not rhe mirena. Unbelievable!! MYbe not nuts after all . God bless!

    • Its been 5 yrs and the whole time I have been a mess. I thought it was the mirena but the drs said it’s my anxiety and depression it cant be the mirena. I also have thyroid disease so they said that my meds probably just need adjustments. I’m getting it out in 2 weeks. I’m so scared bc it did help my period and cramps. But I’d rather have pain then feel insane. Thank you all for your support and stories.

  9. I had been stacking birth control pills back-to-back since 2009 to stop my periods and the horrible symptoms. This had worked just fine, but you have to take the pills at exactly the same time every day or you get spotting. I thought I would try Mirena and see if I could have a hassle and period-free life. I had it implanted on 7/17/13. After two weeks my hair started falling out and the PMS started coming back. After three weeks I realized that most of the symptoms that had gone away on the pill were back; insomnia, weight gain, extreme fatigue, depression, acne, feeling of impending doom, anxiety, cramping, and sore breasts. Today is 8/13/13 and I pulled out the Mirena myself this morning. I cannot go back to those horrible symptoms and ruined life. I was doing so well on my pills. I knew if I went to the Dr. to have it removed she would tell me that it was all in my head and to tough it out. No way, Jose. I am not imaging this any more than I was those awful PMDD symptoms. Back to my pills.

  10. Honestly, your story could not mimic mine better! I had a laparoscopy only 10 days ago to diagnose endometriois.. endo found, aswell as cysts and a “stuck” ovary. Gyn decided to insert mirena to stop periods.. therefore stopping the endo. I’ve refused hormones for 5 years due to severe side effects on the mini pill. Persuaded that the hormone is only realeased locally and there are barely any side effects, I went with it. After the pain relief and opiates wore off, I started feeling anxious. I went into town with my partner and almost had a panic attack when I couldn’t find him.. not normal huh? Then the insomnia began.. falling asleep for 2-3 hours and then waking up bold upright, shaking in a state of panic, managing to fall back to sleep, only to have horrifying nightmares and wake up again! I haven’t eaten a full meal in a week as I feel so sick, and my stomach is so upset, probably from all the stress! I called my GP but was told it was probably just me feeling “lonely” as my partner is working away, and to stick with it for at least 6 months! Then the anxiety began.. I constantly felt full of dread, and cried for 3 days straight for no apparent reason and at the drop of a hat, if somebody even looked at me, i’d cry, i’d wake up crying and go to sleep crying! My partner started to notice and was getting pretty worried.. I’d avoided the internet until now but after another night of no sleep in a state of anxiety at 5am I googled the mirena.. I argued with every GP in the city until I found somebody to take it out. I found a lovely nurse who although didn’t believe it was causing my symptoms, agreed to remove it as I was so distressed; it was removed 2 hours ago, I will NEVER be persuaded to take synthetic hormones again. Thank you SO much for sharing this, really hope that you’re back to normal now! Can’t wait til this feeling passes! x

      • Lindsay I know this is really old but I’ve had my mirena in for 6 months now and I’ve been dealing with anxiety real bad could you please help

      • I’ve only started having bad anxiety and feeling like something is wrong with me 2 months after I got it and my ob said it’s not the mirena

      • I had to remove mine myself because every doctor wrote me off. Mine was not only the same as your story but i literally couldnt even have sex it was so painful even ended up in the hospital twice. It sucks when your trying to tell someone whats wrong with you and they wont listen.

  11. I’ve had my Mirena in for a year after suffering from horrendous periods and have finally made an appointment to have it removed next week, my symptoms are as follows-
    I feel psychotic to the point of wanting to hit everyone, no patience, severely depressed, have no interest in anything, zero ZERO interest in sex or my relationship, lost my ability to care about a lot of things, panic attacks, insomnia, anxiety shall I go on…..,
    I went to see my GP a few months ago and she said I must be mistaken and was it because I was having relationship problems and did I need anger management??? . I’ve made to feel like I am nuts!!!!
    I did not have it fitted at my Doctors but at a sexual health clinic which were fabulous and supportive. I am going back there to have it removed but just thought I may get support from my local doctor.
    Its been an awful year and Im so scared I will always feel this way. My only consolation is my dear friend recently went through the same and says after having hers removed 4 weeks later she feels like a different person. .

  12. I am experiencing the exact same symptoms as you! Its amazing! I have an apt with my GYN this thursday and I Can Not Wait! I know this is not me and I feel so much better when I am not taking any hormonal birth control. You would think I would have learned my lesson after this happening to me with the Nuvaring 2 yrs ago, but I took the Dr’s advice that the hormones only stayed locally and would not mess with my mental health. BS! I even felt better while i was pregnant last year! Never again will I take any type of BC! I am trying to talk my husband into a visectomy (wish me luck) THank you SO much for writing this! Its like a weight is lifted off my shoulders!

    • My husband a vasectomy recently and his recovery time was a week. My Mirena was coming up on the past due mark. Since the hormones have worn off I am bleeding but it’s not as bad as I thought it would be. We decided that it would be better if he had a vasectomy rather than me going on birth control again because I became a raging homicidal crazy woman when I was on the Mirena. I told him I couldn’t go on birth control again because I suffered with depression and anxiety and the most awful mood swings you can possibly imagine. My patience level was 0 with my two boys and absolutely no sex drive.
      I also don’t have fog brain and don’t want to sleep all all day anymore. My doctor told me that it was because I was suffering from the baby blues. I said, ” for five years!?” I am not kidding. I felt better when the date passed to have it removed.

      • yeah right, baby blues for five years!!! omg i cannot believe some doctors. i hear you — i told my husband i’d rather have a thousand babies than go through that again!! good for you. 🙂

  13. Thank you for posting this. I’ve been going through exactly the same thing. I’ve had my Mirena for 3 years as well and I’ve been going through hell trying to get to the source of my sudden and unrelenting insomnia. For me the anxiety is present as is the depression, but it mostly centers around not being able to FREAKING SLEEP. I’ve had thyroid tests, I’ve had a sleep study (still waiting on the results of that), but after reading your blog, I’m more convinced than ever that Mirena is the culprit or at least a huge contributing factor. I’m having mine out ASAP. It sounds like you didn’t experience any side effects after, and I hope I get relief too once it’s gone. But seriously, thanks for sharing your story. It helps to know you’re not crazy, because like you, I’ve been hearing that it “couldn’t be the Mirena” and like you I have questioned my own sanity over and over again since this hell ride started.

    • oh YES! get that thing out ASAP!

      When I went in to get mine out, the doctor said the hormones would remain in my system for another two days tops. As soon as all the hormones were out of my system I had NO SIDE EFFECTS and was completely back to normal. GOOD LUCK!

      • wow! I ve been having these symptoms for the past 2 and half years!! Mirena is ruining my mental health. It is hell!! I wasn’t this paranoid, sad, panicky person all the time … with no desire to live… how do you feel after you took this horrible thing out of your body? Do you feel like a happy person again? I want to remove it but I am afraid to get pregnant.. I already have 3 kids. But I am no longer the same person I used to be before Mirena. I am now a paranoid person full of depression and anxiety. Thank you Linday for sharing your story. This s real!! I feel the same way. and interestingly all these symptoms started happening 1 week after I put Mirena. And they never stopped..i am still debating if I should remove it or live another 2 and half years with this thing…

      • OH MAN, GET IT OUT!! I can’t believe you’ve lasted this long!

        When I got the Mirena out, it took only THREE DAYS for all the hormones to get out of my system and get me back to normal. And I’m not kidding you when I tell you that it was like a lightswitch being flicked. As soon as it was out, I noticed a difference.

        If you are really scared of getting pregnant again, there is Paraguard, a non-hormonal copper IUD. I’ve heard good things about that but I’m too chicken to put anything foreign in my body ever again after the Mirena debacle.

  14. Thanks so much, I’ve had mine in for a month and expected some physical side effects in terms of cramps, bleeding etc….but I did not expect the sleepless nights, mood swings and general feeling of “holding on to the sides”. The doctor talked me about of having it removed yesterday, saying “we won’t hold a gun to your head but………….” suggesting there was NO scientific evident to support the insomnia or associated anxiety, depression, mood swings etc…. She suggested sleeping pills and I suspect next time, she’ll suggest anti-depressants. My parting comment was, I’ve heard of a few people removing them or their own. I was so cross.
    It just makes me realise how lucky we are to have the internet and be able to share all of this information between ourselves. Twenty years ago we’d have been none the wiser!

    • you are so right! i was SO THANKFUL for the internet during this whole debacle. i hope and pray you get yours out soon and your issues resolve!!!! keep me posted!!! xo

      • Lindsay, can I ask how long you had your mirena in before you took it out? This is my second one and I am planning on removing it ASAP. My side effects didn’t happen until after 7 years with Mirena. I hope I don’t crash to hard because I have had it this long?!!?

  15. I just had an IUD implanted 2 days ago and the
    First night I couldnt sleep, and last night I couldn’t either so I decided to go online and do a research because I call the hospital to talk to a nurse but I was surprise that a nurse wasn’t available and I need it to leave a message so I did and I am waiting for a responds and I’ll let you know what was there answer. Now I am nervous they will totally refuse to take this IUD out. I remember asking this Dr if I could remove it on my own but her answer wasn’t clear. I guess I’ll tell them if they don’t take it out I’ll call 911 and that I will take this dumb thing out on my own because they don’t want to. I am so sorry you went through a night mare.

  16. This post has given me hope. My girlfriend of 2.5 years has had Mirena for about 6 months now. Although I believe she still loves me she has no sexual desires with or without me and has openly questioned her love for me several times. She was the one who told me she loved me first and used to be so affectionate. It hurts me terribly.

    I am so stunned with the dramatic turn in our relationship. She has said I’d be better off without her or that we shouldn’t see each other anymore, but she cannot seem to break up with me entirely and always wants me to spend time with her. I wish I could do more for her but the littlest things seem to set her off. We have several weeks of great experiences and fun together but if I say even the slightest thing wrong she will cry and say we’re not right for each other. I love her a lot and the side effects she is experiencing (no libido, weight gain, headaches, dizziness, stomach issues, mood swings, etc.) kills me. It hurts me directly and indirectly knowing she is suffering.

    She has taken the step to see an OBGYN to talk about her side effects. I hope between the two of them they will be able to pinpoint Mirena as the likely cause and get her back to to girl I fell in love with. I am however, very worried her doctor will too say not to worry or it is likely something else. I truly believe this is the problem. Her zest for life seems to be gone. Not only for me, but when she is alone or at work also. Everyday seems to have a new physical or mentally painful experience for her and I don’t know how I can help her.

    My question is, if she does have her MIrena removed what are the complications of that? If she has it removed and still doesn’t feel better and it is something else other than the IUD, is it a painful or less effective to have it a second time around? From what I’ve read it seems it cannot hurt to at least see what happens after the IUD is removed. Seems worth the try.

    • To follow up my girlfriend had her Mirena IUD removed today! She said she discussed her side effects and the OBGYN said it was likely not caused by the IUD. After reading this blog and others and other comments I am not surprised with the OBGYN’s assessment.

      I am so pleased with her decision. I only hope she feels better in the upcoming days and weeks and we can begin what I hope will be a new and happy chapter in our relationship.

      • HI! I actually was just in the process of replying to you!!! I don’t understand why OBGYNs are so reluctant to admit that these things cause side effects. Like I mentioned in the blog, I was back to my normal self in less than three days after removal, which is EXACTLY what the kind OB said would happen. If PMS is a real thing (and it is) and if hormonal changes are PROVEN to cause changes in behavior/mood/overall physical wellbeing, why is it so outlandish to think that CONSISTENTLY PUMPING HORMONES INTO YOUR BODY wouldn’t have some sort of effect??? I sincerely pray your girlfriend’s situation improves. Please keep me posted — I would love to have more examples to point to!!

  17. Thanks Lindsay, I’m make sure to update you in a month or so! My gf still isn’t convinced that the IUD is causing her these side effects. But I’m glad she has listened to me and has had it removed. She has an annual physical/blood-work tomorrow also so fingers crossed if that clears it will point further to Mirena pending her feeling better in the upcoming days or weeks. We have a lot of rebuilding to do but this seems to be the best start I could ask for. For her own well-being and ours. Cheers for the great resource!

    • I had my IUD implanted last Friday. I didn’t sleep one wink last night and Found this post after googling Mirena plus insomnia and am so worried that it’s a side effect! I’m tempted to pull the stupid thing out right now. I’m sure my doctor will tell me I’m crazy and that it’s not related, as she was the one selling me on it and all its benefits. Your comment about the insomnia starting three days later makes me feel like I could be having an adverse reaction too. Thanks so much for the info

      • They will very likely not believe you. It’s ridiculous. Be vigilant in tracking your symptoms and be resilient. Do not give up. I can’t imagine what my life would look like right now if I hadn’t fought my way through this. Hang in there and let me know what happens!

    • Reading your post seems eerily similar to my situation with my Girlfriend. Our relationship went from happy, fun and outgoing, constantly pushing each other to attain goals and to try new things and very supportive too just toxic. Within a week I watched her become very negative and hateful/ spitefull person and seemingly rewrite our relationship to all negative. Very edgy and the least little thing would set her off so I was constantly walking on egg shells. When I mentioned maybe it was the Mirena, all hell broke loose and I listened and watched as every bad aspect of her life which suddenly developed all became a fault of our relationship as she explained it. She would not even consider the mirena being the culprit as it would mean the OB that told her there would be zero side effects was wrong and that everything she has been blaming for her depression and so on would also be wrong. I knew her right up to mirena to be a different person. I was terrified to leave her because I knew who the girl was I fell in love with And she changed very suddenly after marina. I met with my family doctor who is held very highly in the medical field in canada to ask a few question. She told me she has had numerous cases of the same and she will no longer insert them as over 1/2 are coming back with terrible experiences. Or want on depression pills. Scary enough she finally had it taken out but won’t say why. It’s been three weeks and almost right away she became less edgy. Like most spouses would notice certain times of the month were worse then others and the worst of them still remained but that was only a week after removal. The Doctor said it would take about a month for her hormones to be naturally adjusted. She has started to joke around and smile again and has started to be thoughtfull towards me again. The hatred seems to be going away. She is again asking me to do things. The sad part is there is so much trama caused in our relationship now that I don’t know If I can handle it anymore. After 6 months of being the target of such anger and emotional abuse it has built up. I am still trying and giving it more time to see if she comes around 100% over this month but there is only so much a person can take before you go numb and begin to resent someone.

      To the women reading this please keep in mind that if your other half has mentioned a noticeable change in your mood/ personality and they are worried that chances are they say this out of love and honesty if they have stuck around through ups and downs with you. Don’t see this as us blaming you for all the problems but as us worried about you and our relationships. Relationships have two people in it. Not one and some other person who is just there when you want them.

      Also my doctor recommended having a look in progesterone sensitivity I believe is what she called it. And when I looked at a woman’s natural hormone cycle with my doctor it was very evident that when progesterone levels were highest was when my GF was the most angry and upset.

      • This story makes me so sad. I’m glad she was able to finally get it removed and I sincerely pray that you and she can work together to rebuild what has been broken. Bless you both.

  18. Wow these comments are so mind-easing! I’m 25 and after being on the pill for 7(ish) years I needed to take some time away from hormonal BC. The last year of taking them I was getting severe migraines with aura and bad mood swings along with being irritable (Not a good combination when trying to maintain a relationship). My doctor and I decided that it was a good idea to stop taking the pill and see how my symptoms subsided. She suggested that Mirena was a good option but I thought I would research it first before making any decisions. Well, after doing just that and thinking/talking it over with my boyfriend I decided about 6 months after being BC free that I would give it a try. Even though I was fully aware of all the symptoms and horror stories I needed some form of BC and I felt like this was my last option since the doc told me that I would have little to no side affects due to the hormone release being localized within my uterus and not in my blood stream. So a prescription of Ativan and 2 Ibuprofen’s later I’m back at the Dr’s office nervous as hell. As much as I prepared myself for the pain, it didn’t do any good. I can’t imagine how it would’ve felt if I wasn’t loopy from the drugs. I’m not exaggerating when I say that it was probably one of the worst things I’ve experienced as far as pain goes. Thank god my boyfriend drove me because I could barely move without cramping up for the rest of the day. Then there was the cramps days after being inserted. Then they persisted on and off for several weeks after (which I expected). My period started becoming inconsistent (which I also expected but was pretty annoying and inconvenient). As time went on, I started to get bad cramps again which made me consult my doctor. She told me that I had developed IBS symptoms which may or may not have been from Mirena. I also complained that shortly after being inserted, I started to develop acne on my face. (I might add there are brochures everywhere throughout the office for Mirena and whenever I tried to blame the IUD as the source of my problems my doctor was usually quick to stop me in my tracks and prescribe a “band-aid” solution while saying that Mirena wasn’t the cause). She told me that because I was on the pill for so long, it was the reason that I had such good skin before. Even though I wasn’t on the pill for 6 months and still had great skin. Even though it didn’t make sense to me I still went along with it because she had told me that my body was still trying to adjust to the hormones and that I should wait it out. She then prescribed (surprise surprise) me an acne cream that was new and upcoming and the best of it’s kind apparently. Fast forward 2-3 months…. I actually started to feel normal and Mirena was totally forgotten about. Even though my acne still persisted, I was relieved to think that it might actually work out for me. YAY! Fast forward again another 2-3 months… Not so much YAY which brings me to about 2 months ago. Still acne and oily skin… yuck. Cramps came and went (Mostly came when I was supposed to be on my period but they got pretty bad at times which frustrated me). Still got my period which wasn’t regular. Basically whenever it damn pleased to come but it was mostly just spotting for a couple of days which wasn’t too bad. Then, the mood swings started to creep up *sigh*. I was getting to the point where I was actually questioning if it was the Mirena doing this or if something was actually wrong with me mentally. Since my doctor thought Mirena was the greatest thing since sliced bread, I was hesitant to see her at first worried that she was going to dismiss the issue. My mood swings slowly got worse over a period of just a few weeks. This was then accompanied by severe irritability. (My poor boyfriend! I’m sure he wanted to smother me in my sleep some days). I felt myself getting worse and worse and I didn’t feel like my normal self anymore. I just didn’t feel right. Which really started to upset me because it was affecting my relationship and my well-being. I then realized that this is EXACTLY what I was like when I was on the pill. I needed this thing out of me ASAP! Went to the doctor prepared to beg her to have it out. To my surprise, she told me she had no problem taking it out BUT offered me an alternative solution (Shocking!) which was anti-depresants to stabilize my mood. I was actually offended that she would do that but she said she just wanted me to be aware of my options. Just to appease her I said I would give it some thought and come back in a week. Giving it little to no thought at all (my mind had already been made up) I was back the next week. I told her I wanted the IUD out. Five minutes and a little pinch later (I was expecting it to hurt but it was such a breeze) I was out of there! Seriously within just a few minutes I felt such a sense of relief. It was like my body was so happy that it finally had nothing irritating it anymore. I felt so enlightened and free. My mood had instantly changed. I had some mild cramping for a couple hours which was the least of my worries, two days later I got my period like it was the first time. Let me just say there was a fair bit of blood lol but it only lasted 2 days.

    So here I am in present time. Having Mirena taken out has been the best decision ever other than being out of options for hormonal BC (Dr. has told me that my body must have some sort of allergy to Progestin). I guess it’s time for the boyfriend to rubber up! So just to give a little update on how my symptoms/side effects are…. The IBS symptoms are completely GONE, cramping completely GONE, acne started to clear up within days and is completely GONE other than some scarring from before, my mood swings and irritability are GONE (Well back to the normal amount anyway hehe not every woman is going to be completely free of those but at least I feel human again).

    On a last note I just want to say thank you to whoever reads this extremely long post. After reading the other posts on here, I felt like I needed to share my story. Even though Mirena might seem like the “perfect” solution and your doctor swears by it or highly recommends it, just do what you feel is right for you. And even if you have decided to get the Mirena and something is “just not right” or you feel “off”, listen to your body. No doctor knows your body like you do. I really wanted Mirena to work for me and I think that’s why I held off on having it removed for so long. Yes, it’s super convenient but do not let Dr’s or anyone make you think that you should keep it in if your body doesn’t agree with it. Listen to your body!

    • AMEN SISTER! Listen to your body! YOU KNOW YOU BEST! I hate when doctors try and override your own intuition. So frustrating. I’m so glad you got this all sorted out and are feeling better!

  19. Omg this article brought a tear to my eye!! I had the iud fitted back in March and it has had such a negative impact on every aspect of my life!.

    I was recommends to have it since suffering extremely painful and long periods after the birth of my daughter 6 years ago. Over the years the doctors have subjected me to various forms of contraception all of which played havoc with my body.

    I spent 5 years begging for a hysterectomy because the pain and bleeding was so bad but I kept getting refused due to my age,each doctor stating I was to young!

    In the end my husband had the snip,which i hoped would convince them a hysterectomy would be the way forward,but no they recommend another pill. I decided that I didn’t want to subject myself to the pill again and decided to take nothing and put up with the pain!

    In 2013 my periods got even worse lasting anything between 15 to 25 days and they were heavy for the whole time. It got to the point where I’d have no intimate time with my husband,I had to reduce my sports down,which was really hard because I was a keen runner ,cyclist and swimmer. Soon I was having to drop out of triathlons/events because my heavy bleeding had sent me anemic and I was suffering with all the symptoms that come with being anemic.

    So before I knew it everything in my life had stopped due to these heavy periods .I was spending next to no time with my little one and struggling with everything I did.I went to my doctor again begging and crying for help,oddly this time it worked. I saw a very understanding young male doctor who reffered me to our local hospital and for the first time ever I felt like I was being listened to.

    I was referred to a gyno doctor who agreed I couldn’t carry on the way I was and assured me the iud was the way forward,it would stop my pain and the heavy periods which would then mean I wouldn’t be anemic anymore,which I obviously thought fantastic!!!

    Well it’s now November and i had no idea the iud would do very little for my periods ,it’s increased my pain which means I’m constantly uncomfortable and have a permanent pain in my cervix which is sole destroying and after reading this blog I now know why I’ve not slept for 3months and have felt very down in the dumps. I assumed the anxiety I had been feeling was down to lack of sleep and other problems I had, only I didn’t have any problems just very over active mind that has been sending me loopy!!!

    I got to bed feeling exhausted and can never sleep,I think I’m lucky if I get 3 badly disturbed hours,which leaves me feeling very emotional and the inability to do anything. I struggle just as much now as I did with the anemia! I barely do any sports lately,I barely have decent time with my family and I’m struggling in my job, the iud has postively made my life worse!!!

    Thankfully I went back to my surgeon two weeks and made a very emotional plea for help and his agreed to give me a hysterectomy, so Tuesday my hell will be over. I know it seems extreme wanting such a surgery done but after 6 years of hell I can’t bloody wait!!!!

      • Hi, thought I’d post an update. I had my hysterectomy on the 11th November and had open abdominal surgery so I’m still in alot of pain,but I already feel this is worth while.

        My surgeon came to see me post op to explain that I had more surgery than originally planned,he told me that when they opened me up my pelvis,ovaries and womb was black because i was riddled with endometriosis and they had to burn as Much of it out of my pelvis and ovaries as they could to reduce the pain I had been suffering all these years.

        He appologised to me and stated they should of done more for me back in March instead of fitting the iud and if they had investigated further in March they would of done the hysterectomy then because of how bad things appeared to be when they opened me up.

        Although I’m in alot of post op pain I can honestly say I already feel that my anxiety has lifted and the intense feeling of worry I’ve felt for the last 3 months seems to of lifted the last few days and I can sleep,ive been sleeping loads which has felt amazing!I i know my painkillers maybe helping with this but it still feels great!

        If there is one bit of advice or one thing I’d like to share with people from what I’ve learnt is make your doctors look harder,instead of letting them mask heavy bleeding and pain with contraceptive like pills or iud’s make then look harder,make them find out why your suffering!I suffered for 5 years and now I know why and I’d really hate for any other women to go through the hell I’ve been through!

  20. Hi. I am so desperately hoping the Mirena is the cause of all my recent issues. I have had severe depression, insomnia, hair falling out, panic attacks. SEVERE panic and anxiety and horrible thoughts. I have been sent to therapist/psych office. I am getting the Mirena removed TOMORROW!! I am praying this will relieve all my symptoms I have mentioned, along with a foul smell and tremendous weight gain. I have lost will to live life. I feel like everyone, including my family, is a stranger. I have no clue as to why this is happening and thank goodness I came across postings on the internet about this, otherwise I would have gone to the psych ward just like others. I am so close to doing that but I need to know first if it is the Mirena. There is a burning sensation in my uterus also. I too only read the pamphlet the doctor gave me and trusted this was my answer for the heavy periods I had. It did fix that problem, but OMG. I would prefer to bleed for a week than be on the verge of insanity and panic every single day. I have had bouts of depression before, but NONE like THIS!! I am even scared to go to the doctor tomorrow. I feel like being alone but I am scared when I am alone. Very very paranoid and worried about everything and everyone. Also having constant “flashbacks” from my life… I am 46 and have been thinking about things that happened to me when I was just in middle school. I even went to my GYN and she said not to remove the Mirena, that I was just having a panic attack. Well, the panic attack has been going on since JULY!!! I finally reached the point to see someone in September. I would wake up with night sweats in a PANIC. Panic so awful I can’t describe it here. Again, I am getting this removed tomorrow and I only pray it gives me relief. I need to sleep again. I need to be happy again. I need to care about something again. I would appreciate contact from anyone who has also had this happen.

  21. I understand completely!!! the effects of Merina IUD gave me such horrible panic attacks at one point in time I had thoughts of suicide. My panic attacks would last for days….it was like my mind was on replay and I would go for days without eating due to the fear and anxiety the attacks created. It took me two refills of xanax and three months to figure out it was my merina and I got it out as soon as possible thanks to wonderful blogs such as this to help me figure it out! My OB/GYN assured me that it couldn’t be my iud and told me I need to see a counselor!!! I have never had problems like this before and my life wasn’t anymore stressful. She did remove it after I urged her to. I felt fine for a few days and then the “merina crash” hit. It sucked but I had been living a hellish nightmare anyway and knew it was a step I had to take in order to get all those horrible chemicals out of my body. I have gone through one cycle since having my IUD removed and while I did have a few days of distant panicky feelings during “that tine” my mind could control my thoughts and I got through it with out medication. I am almost back to the person I was before I had this devil placed inside me….I will never get another iud!!!! Ladies know and trust your bodies!!!

    • PREACH! i am SO GLAD you listened to your body and kept fighting. i really honestly believe that the OBs are getting some sort of financial compensation from mirena or something because they push it so hard and are soooooo adverse to any criticism. ugh.

    • I am so beyond glad to have found this blog site! Alot of these ladies stories mimic mine, so I’ll share my experience as well.

      **I got my MIRENA IUD put in back in august at my 8 week check up after having my son. **

      It started the first week of october, I came down with a 104 fever suddenly. I felt super sick, terrible stomach pains and (tmi) uncontrollable diarrhea. Then for the next two weeks I couldn’t get out of bed. I just felt so weak, I couldn’t eat, couldn’t walk. I had my 5 year old and 4 month old to care for and I just couldnt. I lost 15 lbs within those 2 weeks. My family and I chalked it up to a really bad flu. I eventually begin to feel better but then a few days later all hell began to break loose. I felt like I was in a zombie like dream state. I was saying stuff that I had no idea why I was saying them, like full on LIES for no reason! I had no idea what I was doing, it was like all the lights were on but no one was home kinda thing. I was functioning but my brain was off. I just felt like I wasn’t me. It got so bad at one point my mom wanted to take me to the psych ward cuz I was behaving so bizarrely. She thought either I was going thru post partum depression or that I had completely lost my marbles. I kept telling her I’m not going to the hospital, I’m not crazy I just don’t know what’s wrong with me. I would just stare blankly at anyone who spoke to me.

      I prayed and prayed for an answer.

      Then one day I started googling and became convinced my IUD was the culprit. I called my OB’S office and they didn’t have any appointments available until December and even then it’d just be a consult, so the dr wouldn’t even take the damn thing out. I started bawling my eyes out to the lady on the phone, “I don’t feel right in my head! I can’t wait until December I need this devil out of me!!!!” So I googled again how to take it out myself, and 20 min later I literally felt like a new woman. The next day I started my period and a week later I am back to my old self. Feels so good !! Praise the lord!!!

  22. OMFG…. I have been battling this for years. I WORK at a physicians office and still can’t get any answers. This is my story:

    I’m so sorry that you had to go through what you did, but I am so glad people like you have helped me realize that I am not crazy. Getting the Mirena removed at the end of march!

  23. I absolutely love this I have!!! been experiencing the ECXACT same thing, the mirena literally ruined my life, I left a job of 8 years where I was making GREAT money, I lost my two best friends, and almost lost my 20 and 17 year old, lost a couple of great relationships because of my CRAZINESS! I am in the midst of losing my soul-mate of a lifetime who suggested that I get on depression meds asap so that we could have a relationship because he cares for me a lot but doesn’t think that my anxiety disorder is healthy for our relationship!!! Which I agree 100% with him. I actually may have lost him already, but while reading your post I called my OB which couldn’t see me until next week, so I got in with another OB tomorrow, all because I cannot handle one more day with this EVIL inside me. I will get back on here in a couple of days to see what the results are. I need some good sleep myself I have been lacking for a couple of years now and it’s starting to show on my face. I have been on the verge of suicide, I have more foggy days than good ones. I have picked up smoking marijuana because it relaxes me when I feel an attack coming on. I REFUSE TO LIVE LIFE IN THIS DARK ALLEY WHERE I SEE NO END. THANK YOU FOR THIS POST YOU MAY JUST HAVE SAVED MY LIFE!

  24. I found this blog when searching for sleep side effects of mirena. I do think mirena had some effect on your moods that started thisnl whole thing for you,
    but the memory lapse and such, I think is more attributed to the high amounts of sleep aids and anti-depressants you were on. I’ve had mirena for about 2 weeks or 3 weeks now. I’ve been constantly spotting though that doesn’t seem too abnormal from what I’ve read. For the first week my anxiety and moods were a tad out of control. This really isn’t specific to mirena for me – any hormonal birth control does that to me when I first start it. To be honest, most hormonal birth controls are linked to anxiety and depression. What I have noticed this week is, is the insomnia. I’m not bad yet, I can still get enough sleep in the night. I don’t have issues falling asleep initially but I wake up at weird hours and will have problems falling back to sleep.

    • Yea, me the same. I’m not bad yet, it’s been almost 2 months that I have Mirena on, but noticed that this is insomnia for sure has been only for 2 days. I’ve had mild anxiety that I myself am not sure whether it is or not, but something is not quite settled and I don’t feel relaxed anymore.

  25. Got mine out and feel better already. So glad I didn’t wait and have such a terrible story as you.
    I’m writing about the results of having it out on my blog lifeafterthem.com.

  26. I have been writing a very similar post in my head for months now, because I had a terrible (although not exactly the same kind of terrible) experience with my Mirena IUD, too. Let’s SEO the sh-t out of that horrible product until the world knows the truth! 🙂

  27. Hey, so I just read your story today.. I’m so sorry you went through all of that. Today I was telling my aunt about some things that have been happening to me and she told me to do some research on my birth control which is mirena… so this popped up. Almost every one on here has been experiencing the same Things as me. I’v honestly had some sort of birth control running through my system since I was about 16/17 because of period issues. But I got married a couple years ago and had quit the pill because I got very very VERY depressed and I had never felt like that before.. some days when I would take the pill I swear I could feel that heavy feeling instantly so my hubby told me to go off of it.. it was a good 6 months before I got mirena and during that time I felt slightly different but I feel like it takes quite a while for the stuff to get out of your system.. well this past October made a year of me having Mirena. I’m 20.. and anxiety has become a part of my life.. having anxiety attacks..worrying about things that aren’t happhappening.. nervousness. My skin has gotten worst which I think may be from just being stressed out about being so darn anxious! But it could be from mirena too.. Iv also been having lots of stomach issues which I have gone to the doctor for. Didn’t start till this past year.. just reading all these things has made me realize all the changes in my body since I got mirena. When you’re married..Its not just yourself it’s affecting it’s your hubby too! Mine just wants me to be happy And help.. and I do too! I’m thinking I’m going to be doing something about this soon. I’m just a tiny bit scared because I keep hearing of how when it’s taken out there are side effects.. hopefully that won’t be the case.

  28. Thank you so much for this post and all the comments.

    I’m another woman to add to the list. I stopped taking Yaz a few years ago after four months on it because I started experience panick attacks. I had always suspected previously that anxiety disorders and panic attacks were semi invented syndromes suffered by people who need attention. I was wrong! (Sorry) My doctor refused my suggestion (based on timing) that BC and anxiety were related however he agreed to switch me to lower dose Alesse. I improved but retained distant feelings of paranoia and impending doom around my periods. Finally, for convenience I switched to mirena last July. Since then I have gradually begun to experience increasing night sweats. I wake up and the sheets are soaked. I thought this was strange… And gradually, always near my period (I don’t bleed anymore but retain PMS symptoms like acne and sore breasts) I have had increasingly debilitating anxiety and paranoia. It’s usually directed at my husband who I suddenly become convinced is leading a double life (I’m embarrassed to even type this, he’s wonderful). I usually have enough sense to keep these feelings to myself since there is no evidence or even logic behind these feelings of paranoia. Currently I’m on day three of what I can only guess is a panic attack. I fall asleep and wake with a feeling of doom and my heart start racing. I can’t eat, I have the trots (lovely), and my mind jumps from “I probably have a brain tumour” to “how much would it cost to hire a PI to tail my husband” (tail him where, to and from work?? Craaaazy!!!) I know in brainest brain that this is NUTS and all paranoia. My sister, who I can confide in and has had genuine issues with depression, is like “You’re tripping and need to STAHP.”

    I’ve never experienced depression or anxiety before I started messing around with BC. Bungee jumping? Sure! Leave my job to start my own business? Hell yes. Husband wants to go on a golfing trip with his buddies? Good for you! No doubts, no worries, no jealousy. Until this.

    So thank you very much for sharing. I’m seeing my OBGYN next week for removal. I’m already prepared for her to disagree with me but I will tell her my story anyway so she can add my anecdote to the list. If there are enough of us maybe they will finally start listening to the women using it and not drug funded studies.

  29. Thank you so much for sharing your story. Currently awake at 5 am as usual, I know it must be from the mirena. I have not been myself in the 2 years I have had it in. Anxiety, insomnia, and panic attacks as well. Calling my doctor first thing in the morning to get this awful thing out of me. Thanks again!

  30. I’m 51 years old & I have had my Mirena out 3 weeks now after having it in 8 weeks. I can’t believe the change in my life. I’ve gone from a confident fun loving woman to a timid shell of a person. I’ve been put on ante depressants, anxiety meds, sleeping tablets, seeing a pschologisy and now they want me to see a psycharitrist. I can’t sleep, can’t eat, can’t work. can’t function. All my friends & family are worried about me and just about all I can do is sit and stare into space. There are some times when I feel almost normal but they are few. The insomnia & anxiety are by far the worst side effects. The most frustrating thing is finding medical people who believe you. I feel lost & shattered and like this will last forever. I’d love to hear from anyone who has recovered what they did and how long they took?

    • Hi Jill. After I got mine removed it took about 3 days for the hormones to all leave my body, but after that I was completely back to normal. Get it out ASAP!

  31. I’m so glad I’ve found this thread. I’m having mine removed on tues and it can’t come soon enough. I’ve had mine for 18 months and I have been so depressed. I almost left my husband last year but have been fighting to save our marriage. The light bulb moment only happened last week when I started researching Mirena side effects. I called the doc’s the next day and told him I want it out. I tried last year to get it removed because I could not stop eating junk food and I’ve been very controlled all my life, but as with most people’s experience the doc just dismissed it and told me to keep it in longer and everything should settle ….. BULL!!!! Nothing settled and I battle that flat feeling everyday. Really glad to have found this thread, thanks Lindsay for sharing your post Mirena experience…. ROLL ON TUESDAY!! 😊 Good luck to the rest of you that are having it removed soon. Will keep you updated with how I feel after.

  32. I’m so glad it’s not just me, do t get me wrong I’m so glad u are ok now and didn’t have to suffer for too long and can enjoy your beautiful baby. I had it put in oct 2013 and within weeks my mental health deteriorated, I had slight depression before. I struggled on not even putting two and two together until In the March I could no longer cope and had a complete breakdown and got sectioned under the mental health act. I was diagnosed bipolar and personality disorder and put on loads of mind numbing pills which have caused me to gain 5 stone in weight and still my moods were swinging from angry to miserable. I attend a psychology group called managing emotions. Anyway last week I had a brainwave and actually connected the mirena to when I went downhill and got the evil cretin taken out. This was last Thursday and I am so so pleased to announce that this lovely warm calm feeling has enveloped me now and I’m so glad I found out the cause. It’s taken away nearly 2 years of my precious life and I’ve practically missed my children changing from babies to little girls but I’m glad at last I’m calm and settled and don’t think I even am bipolar, it was just a horrible reaction to the mirena coil. I would advise anyone with even slight depression to avoid mirena coil

  33. By the grace of God I found this page!! I had the Mirena taken out today!….let me back up a little…I have always been known as the upbeat, make you smile, funny outgoing person who’d do anything for anybody! Well in 2011 I had my first child, at my post checkup, my Dr suggested Mirena…I went along with it thinking “hey he’s the one with the credentials,he must know what he’s talking about” so I get it put in 2012…well fast forward, I find myself becoming very down and out…thinking it’s post partum, my Dr prescribes me anti depressants…which didn’t help, so a prescription for a DIFF antidepressant….nothing…we do this about 4 times before I say screw it and quit trying…at this point in my life, I am not living. I have no emotions, I lost all my confidence, I don’t care to care about anything, I began living a double life which entailed gambling, an affair, and drugs…this of course made me into a lifeless zombie…that lasted about a year before I had an reality check about losing my daughter…well I went into treatment and at this point I am convinced that all the depression and anxiety is from the drugs, so I get put back on antidepressants and they work absolutely amazing!!! I’m happy, healthy, etc…but then once I’m home again, the battle to save my marriage breaks me down and burdens me with shame and guilt….and depression. Well my husband and I went through Marriage Bootcamp (yes the one on tv!) And had some life changing experiences with forgiveness that freed me from shame…my husband and I are doing good, despite the fact that my sex drive is and has been extinct. Like I Never have the desire, ever!!! So we decided my hormones might still be out of whack cuz I’m on a really high dose of antidepressants… well before switching that, we decided to get the mirena removed cuz we want to get pregnant soon. Soooo I was so nervous that once I get it removed that my hormones are gonna go crazy or the effects oof the antidepressants are gonna change…I’d like to get off them! Well I had the mirena taken out today and I’m really hoping to get back the old me…I hate this “flat lining” me.

    Has anyone had a similar experience with antidepressants and getting off mirena?!

    • I’m pleased to say that since having the mirena out I’m off my anti depressants and feeling great, I’ve got “me” back. Hope u get similar results xx

  34. Hi there, i’m almost 28 years old and I had the mirena coil in for just over 3 years, my doctor recommended I switch to it from the copper coil as I was struggling with heavy periods and depression from it.. I wish I had never listened to them.
    Swapping them was straightforward enough, a little uncomfortable but fine, i felt immediately better and for a year or so after didn’t have any major problems, other than some mild anxiety. Gradually over the course of the next 2 years the anxiety worsened to the point where i would wake up with panic attacks every morning, i’d be constantly exhausted, have headaches, cry over nothing, my skin was disgusting and i lost all interest in being intimate with my husband. I felt as if i couldn’t function or be the wife and mother that i want to be.
    2 months ago i went to my doctor to ask for it to be removed, she couldn’t find it.. i waited 2 weeks for a scan which showed that fortunately it was still where it was meant to be, but the strings had been cut too short (I’m sure they were fine before so I have no idea what happened).
    I made another appointment and had 2 nurses try to remove it, which they couldn’t, so a week later my doctor – instead of referring me to hospital – decided to try again! She made a joke that she was certain she could have removed it and that it looked as if she was lying.. sent me home to await my hopsital referral for surgical removal.
    2 weeks ago I had it removed under general anasthetic, procedure was quick and relatively painless just some cramping and bleeding afterwards, the bleeding has stopped now.
    However, although my anxiety went initially, it has returned over the past couple of mornings and i’ve been struggling to control it – I think it coincides when I am due on my period, but i am yet to have one. My husband had a more ‘serious’ operation recently and I need to care for him and my daughter, I am due to start full time work again this Monday, and I just want to have it under control. I’ve been taking Kalms, rhodiola, drinking tons of water and chamomile tea and eating as cleanly as possible – I don’t want to take the antidepressants the doctor has given me, I can’t afford to make it worse. I’ve read that 5-HTP is effective, although it can make you drowsy so be careful if you’re driving!
    It seems like there is no immediate fix to this – if anyone would like to message me and keep in touch about concerns or to track getting better i’d love to hear from you, a lot of forums i read don’t have very recent posts. My e-mail is rifhanley@gmail.com

    Take care of yourselves, and remember, it won’t last forever!

    ~ Eva

  35. I’m in tears! I couldn’t be happier knowing that I’m not crazy, but so angry that I’ve allowed this to go on for so long. I’ve had mine for almost 3 years. I thought these changes were attributed to age and hormonal changes after having my son. I have irrational mood swings, acne of a teenager, two week long periods, unbearable PMS ( worse mood swings, depression, migraines, cramping, diarrhea, among others), constant bloating and cramping, fatigue, and insomnia. I hate this thing. The problem, I need birth control. My boyfriend and I do not want children until after we decide to get married. But I’m thinking even a low dose pill could be better than this.

  36. I am glad you made a blog about this. I am 25 years old and had my daughter 11 months ago. And I was having the same syptoms you were having including anxiety, and still have constant bleeding and in depression everyday and tired and cant seem to have enough sleep. I called my doctor a month after having it in and they gave me “birth control” pills to take care of the bleeding, which never stopped. And I have no insurance and was going to cost me $140 to get it out, which i dont have. so Ive gone almost a year with dealing with these symptoms. And I recently decided to try and have relations and now i cant find my strings and bleeding got worse

  37. I had started Mirena in Sep and now it has been almost 2 months. I didn’t think about my sleep too much until 2 days ago that I felt this IS insomnia!. I have Mirena for Fibroids (for less bleeding that caused by Fibroids). The first night when I noticed that it was insomnia, I took some sleeping pil (Chinese herbal), but was worried whether it would affect Mirena. Anyway, I suspect Mirena for my insomnia now and found this site. Thanks for this site and I will see whether insomnia can go away or I have to eventually take out the Mirena.

  38. It has been almost 2 months since I have Mirena. Recently I started to have insomnia and I suspect Mirena for it. I started to google on about Mirena and insomnia and found this.

  39. I’m just another story to add to this giant list of reasons why Mirena is awful. I will be getting my Mirena removed tomorrow.

    I got my Mirena about 8 months ago. About 8 months ago, I began experiencing severe anxiety and depression. I began having multiple panic attacks a week. Lots of crying, couldn’t catch my breath, and extreme feelings of hopelessness. I lost all interest in doing anything. I became a person who could barely leave the house. I loved my job, but I began to call in sick once a week because I couldn’t imagine the thought of going in. It was horrific. I was formerly pretty active and tried to maintain a fairly healthy diet. On Mirena, I gained about 50 pounds in that 8 months. I stopped caring about what I ate and I literally just did nothing. Unlike you, I did not have insomnia, in fact, I often began falling asleep all the time. There are moments when I feel like I’m totally breaking down for no reason. My patience, my ability to relate to others, and my spirit are completely different than my pre-Mirena life. I’ve had thoughts of suicide, self-harm, and doing drugs to cope.

    I sought out advice from my PCP, who gave me a prescription for Xanax. I got a psychiatric evaluation and began counseling. I feel like I’ve tried multiple avenues to deal with these issues. It was only after my Mirena research that I realized there may be a connection. The issues began almost immediately after getting the Mirena, but I didn’t see it as I had just moved and had a few other bigger life events. I blamed my stress, anxiety, and depression on that instead of the Mirena.

    Anyway, I’m hopeful that the removal tomorrow will put an end to this craziness. Thanks for your post! If you’re reading this and considering getting the Mirena IUD- make sure you research and keep an eye out for these side-effects!

  40. I am crying reading all of these posts. I am 26 and I had Mirena inserted in 2011, a month after the birth of my first child. Before Mirena, I was that happy go lucky girl, always laughing and making others smile. I made friends easily and I wasn’t shy at all. I couldn’t even wrap my mind around how people ever got depressed because I was just so happy to be alive, depressed people didn’t make sense to me. About a month after Mirena, I was constantly tired, moody, and I felt lost, like I didn’t know how to live my life, or what to do every day. I thought it was PPD, and decided to wait it out.

    I’ve had Mirena now for 4 and a half years now. The worst 4 years of my entire life. I fell into a deep depression within 6 months of having Mirena, causing my son’s father to leave me. My depression only got worse with time, and eventually the anxiety set in. I started abusing painkillers to ease the emotional pain I felt every second of the day, but eventually quit. My hair comes out in handfuls every day. I’m surprised I have any left. I was diagnosed with severe depression, anxiety, and agoraphobia a few months ago. My anxiety has gotten so bad, I cannot leave my house. I don’t even go outside to check my mail or take out my trash, My husband takes care of anything that requires leaving the house. Yeah, I somehow found someone who wanted to marry me even though I feel like I’m trapped inside my mind. I have been planning my suicide for about two months now. How it was going to happen, what to write to my son and husband so they knew it wasn’t their fault, etc. I have felt so crazy for so long, I would rather die than continue to feel like this.

    I just read every single post on here and I haven’t felt this hopeful in YEARS. I feel like everything I’m feeling can be attributed to Mirena. I’m calling my doctor tomorrow to get this thing out. I can’t stop crying, thinking about how terrible of a mother I’ve been to my son his entire life. I always just thought I went crazy after having him because I couldn’t handle the pressure of being a mom, even though I’ve known I wanted to be a mother since I was very young. The idea that this might not be my fault, that I might not be the anxious, depressed, miserable wife and mother i feel like is beyond words. I might get to show my son what a good mother is like. What it feels like to go outside with me, to go to the beach, the park, even just the front yard.

    Thank you so much everyone for sharing your stories. If you ever wondered if it mattered or helped anyone, please know that it absolutely has.

      • Hey I just wanted to follow up on my previous comment. I have been fighting with my doctor since November to get my Mirena out. He kept saying “It expires in a year anyway, just wait until next August.” I have tricare prime and there is only one doctor available on our tiny little base so I couldn’t just change doctors. I begged him for months and he refused to even give me a referral to a gyno. Well he was stationed elsewhere last month and we now have a new doctor here. I made an appointment with her last week and told her I wanted my mirena out. She said “Alright, let’s do it” and took it out right then and there. No questions asked. It has been 9 days since my removal and I feel better than I have in my entire life! My sex drive is already back, I’m not falling asleep in the middle of the day, I get out of bed SO easily and I love spending time with my son! I feel like the person I’ve been for the last 5 years wasn’t even me. Best decision I’ve ever made!!

  41. Hi all.
    Just thought I’d post on here to get a view or opinion of you ladies.
    My ex finished our relationship a couple of weeks ago saying she was feeling lost, low, depressed, having sweats in the night, bloated tummy, some foggy feeling, headaches, total loss of sex drive etc.
    She says she loves me to bits and I’m the best guy ever she’s had in her life, but needs to find herself without bringing down with her. Just so hard because we want all the same things as one another, but something has caused this.
    She says she hasn’t been right since she had the mirena coil fitted. She’s totally confused by us, everything really.
    We still get along well and I have remained there and stood by her. After a recent chat, she decided she had to get it out of her but was told she had to wait a month. I made a call to the hospital and managed to get her an appointment the next day and it was removed on Thursday 17th Dec. She was so thankful to me.
    So now I thought I’d give her some space, she’s been having some cramps etc, but I’ve backed off her a little to give her time for her body to re-adjust.
    Any help or advice would be so appreciated as I love her so much and don’t want to lose what we found in one another.
    Just hope having this thing removed will change her way of thinking.
    Thankyou in advance to those who reply to me x

  42. Reading your story, I am really sorry for you. Wish you had my OB. I got my Mirena 6 weeks after my sons birth. For 6-8months I battled with my periods. My male OB suggested I get it as none of the other birth control worked for me. I had it in for close to 2-3 years. We moved to a new city so I got a new OB. During a biopsy, she accidentally took out my Mirena. She gave me 2 options: replace it now and if the biopsy results are not good, they need to remove it for surgery. Otherwise I can eait a few days for the results. I wanted to wait. I bled so bad and was so moody after it was removed. Googling my symptoms, I realized I had the Mirena crash. So I asked my doctor why she didn’t warn me. She told me that a small amount get the crash and it is is generally not seen as something bad, because your body is trying to adjust to it. But she was shocked that my first OB didn’t warn me about it. Apparently it does take up to 6-8 months for your body to adjust to the Mirena and have regular cycles. But like any medication, it does not work the same for everyone. My friend got hers, had one period and nothing again. But the biggest shocker to me: I was now diagnosed with postnatal depression, a month before my sons 4th birthday!! I do hope things get better for you.

  43. I’ve been thinking I was going crazy! I had the mirena in for about 4 years. I started getting really bad anxiety and mood swings. I felt lost, confused, couldn’t even become familiar with my own family. My friend immediately told me get that thing out! That’s not like me to feel like that. I’m a happy person. I took it out Dec 2nd and I still feel crazy!!! How long does this last. My ob gyn put me on Zoloft til I can figure myself out. But I don’t want any F*ing pill or anything that doesn’t belong in me. I’ve been on the meds for 2 weeks and I just wanna die. How long will this last? ??????

  44. hey Lindsay. my name is Jason. I have had some issues with my girlfriend about this iud. she first got the mirena at the beginning of June 2015. she was on the depo shot beforehand. the gyne said that the depo shot would be completely out of her system in a month of two after the last shot. so, when she was ready to get the next shot, she chose to get the mirena. the day she got the shot she usually has a small reaction to it. I’m guessing because of the hormones. the reaction consisted of a small sneeze attack and her feet and palms inched. also, when we had sex she had a pain in her lady parts if I hit something just right. she thought that this was because of the shot so we switched to the mirena. like I said she got it in the beginning of June 2015. July and August were pretty good with us. come September though, things changed tenfold. her sex drive was next to nothing. she was irritable a lot. I couldn’t do much without annoying her. she wasn’t affectionate whatsoever. we didn’t have fun anymore. extreme mood swings. the last 3 months she has been sick 4 times. she catches everyone’s cold. it seemed like this weakened her immune system. she just doesn’t care much about anything lately. it got worse as time went on. she felt like her love for me and feeling for me have dwindled. this happened at such a rapid rate that it was unhealthy. she always used to text me that she missed me a lot and she loves me so much. but ever since this mirena, I haven’t got any of that. we since broke up because she said she needed some space. that hit me HARD. the first few days I called her and texted her. and she said it wasn’t helping my case. she said she needed space. she didn’t know what she wanted. I finally called her yesterday (10 days without communication whatsoever. nothing. not even a text) and we ended up talking. she is very very stubborn. so it took a lot to get her to think this mirena was affecting her. she finally said that she was gonna it removed. she is going to do it at the beginning of Feb. I think the best thing to do is to go back on the depo shot because things were amazing during that time period. I think she should go back to what she knows works. I just didn’t know how long the mirena hormones would take to get out of her system and her feelings for me to return. because I know deep inside she loves me. I just know it. I don’t think you can be that mean to someone that loves you so immensely. since she has been acting up, I have been such an awesome boyfriend. basically perfect. I just don’t know how to go about getting back with her. I just can’t wait til this phase is over.

    • hey there. sounds like a rough time for sure. 😦 so very sorry about all this. my doctor told me that after having the mirena removed my hormones would be back to normal in 3 days. let me know what happens! ❤ I hope she comes around!

    • I know that it’s been a while, but is there any update on you and your ex? Going through the same thing right now. Gf, who I love very much and who called me her “forever love” quite often, started with the “I love you but I’m not ready and need to be on my own” talk. She had the hormonal iud put in a couple months ago. I just don’t understand how someone can go from wanting to spend their life with you to wanting a life without you in such a short amount of time.

  45. I just broke up with my boyfriend, and he just texted me begging me to get my IUD taken out, or at least think about it. I did lots of research before getting it put it, however I still decided it was my best bet for birth control. The insertion went fine, had a period for a week and a half. My IUD was inserted Aug 31, 2015. 4 months later and I’m realizing that it may be to blame for my moodiness, zero sex drive, more acne, hot flashes(I’m 19!), anxiety attacks, change of sleep pattern, and lack of caring(slight depression or something). Looking at the situation now I can’t believe I never thought about my IUD as the culprit. I am going to get it removed, let my hormones stabilize, and move forward. Even if the relationship was’t right, there is no need to be dealing with the side effects when I no longer need birth control. Hopefully we can work things out when I’m no longer raging hormone crazy.

    • I experienced the same issue with my girlfriend. I wrote the comment above you. I feel like you should get back with him and work through this together. I don’t know your situation, but I’m assuming it was somewhat like mine was. that way, when it is all said and done and you’re back to yourself, you both will have learned a lot. that’s what I wanted my girlfriend to do. but she just wanted her space. essentially up to you. just my 2 cents

  46. I’ve been on Mirena for ten years. I had to fight to get it, since I have no desire to have children and wanted something effective. Due to the consideration of advice that my mind might change as I got older about offspring, this was the most effective thing I had ever heard about that could leave that potential choice intact…but boy, it has played hell on my mental and emotional life.

    I don’t have many mood swings on it, at least for the first eight and a half years- thank goodness (they are getting bad now though) but my libido tanked right away. It got even worse after the second was inserted. Otherwise manageable acne became painful, cystic and some even boil-like. Some very intense depression and constant fatigue, as well as accelerated and constant hair loss.

    I cannot wait to get this out, and see if it really is the culprit for this that I believe it is. Tubal ligation, here I come.

  47. Thank you for posting this. I am crying with the release that I feel hearing your story. I booked in to have mine taken out in 2 weeks (that is the first available appointment!) – my psoriasis is now all over my body and my chin has shocking acne. These are not significant in relation to the fact that for the first time in the history of my life, I cannot breathe properly. My chest is so incredibly tight I have spent the last 48 hours physically reminding myself to breathe. I feel I am on the edge of a panic attack. Prior to this week, I doubted that panic attacks even existed, now I feel minutes away from an attack and from running far away from the wonderful husband and children who make my life so perfect. I am counting down the days until I feel like me again, 14 to go. Thank you for posting.

  48. I had my Mirena implanted 5 weeks after delivering my first son via c-section. I thought that Mirena would be a terrific alternative to the traditional pill seeing as I experienced very negative side effects while on the pill (primarily mood related and pre-menopausal symptoms). For the past few months I have been experiencing extreme mood swings, constant tear fullness, depression, anxiety, an impending sense of doom, zero libido, and an entire body flare up of Keratosis Pilaris. I chalked all of these symptoms up to the stress and sleep deprivation that comes with having a child. However, my son is now 5 months and sleeping through the night, and I feel that I am only getting worse mentally. After turning to the internet for answers, I found your blog and think that you are spot on with your suggestion that my Mirena IUD is certainly contributing, if not completely causing, all of my symptoms. I plan to call my OBGYN in the morning to request to have the IUD removed. However, here is my question……what other contraception is available that is non hormonal? I am not interested in having another child any time soon and do not want to use condoms. Have you had any experience with Paragard?

  49. The Mirena ruined my life!!!

    I had panic attacked, depression, bled for 16 months straight and my life was turned up side down!!!

    More research needs to be put into this.

    I am a mental health clinician and during our assessments we do not consider the Mirena as a factor or trigger of mental health issues, however after my experience I will surely be asking all of my clients to consider this.

    • I had a very bad experience… I had medina the full five years, I had so much cystic acne I never had as a teenager. It has not gone away 8 months post removal:( I’m going to see an endocrinologist for all of this. The acne (4-5 a day since merina was inserted) now it’s about 3 a day.. But the acne and hair loss (I’m in my twenties) is not the worst part by far. I was depressed and had major anxiety toward the last year of iud… Now post removal it’s so bad I feel like I’m going crazy. I talk myself out of my paranoia every single day, and this has also turned into severe depression. I am a mother and a wife and I know I have so much to be thankful for, yet I am in constant anxiety every day. It’s bad.

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  51. I got the Skyla IUD in several months before my wedding. My body had the worst cramps for months, and then once I was matried sex was painful most of the time. When I tried to bring up this issue with the nurse at my clinic, she proceeded to tell me that we just weren’t getting “warmed up” enough. I doubted her because we had previously had sex with no issues, but tried to put more effort in. It didn’t help a lot. About 8 months in I began to become nauseous, fatigued, and dizzy for a week or two at a time. I went to the dr.’s twice and had many blood tests, etc. Everything kept coming back normal. I had also started bleeding every single day for weeks that turned into months. Every time I talked to the gyn they said it wouldn’t make sense that it was the IUD since the symptoms hadn’t started until 8 months in or so. Finally after 1 year of the IUD I thought that I should get it out because I couldn’t bear to keep it in if the IUD did turn out to be the problem. The second it came out it felt like a balloon deflated. I finally stopped bleeding. A day later I had the first orgasm since I had gotten married and I figured that the IUD had bern causing inflamation that probably made sex painful. My lower belly also looked flatter than ever before. A week after a terrible detox of the hormones from my system I went for a run and had more energy and didn’t have any more dizziness, though I do occasionally still have nausea.. haven’t figured that one out yet. I will never use hormonal b/c again. We have been 5 months without getting pregnant by charting and using the pull out method.

  52. So happy to have found this site! I had mirena put in on June 25 and have gradually gone down hill. I haven’t slept well in a week and have constant anxiety. This thing is coming out today!

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  54. Hello! I have had my Mirena IUD for just over a year now and have not had any problems until about 3 weeks ago. I had some stress from work, but never have I felt so bad in my life. It’s like this overwhelming feeling just crept onto me. I’m such a happy go lucky person so for me to feel this way freaked me out and everyone else in my life. I had anxiety, depression, insomnia where I only slept an hour or two at night with cold chills and shaking and feeling like my heart was gonna jump out of my chest or up my throat. I felt like I also couldn’t breathe. It scared me to death and ever since then I have had constant anxiety. I have been sleeping better, but this anxiety won’t go away and no offense, but my bowels has been cramping really bad, I’ve felt nausea to where I haven’t wanted to eat and even when I was on pills I never ever felt this bad. It’s starting to interfere with my life and relationship because I don’t feel myself. I feel like an alien in my own body. I feel somewhat better, but it’s the constant anxiety that is bothering me so bad. I have been doing holistic medicine because I don’t want any antidepressants because I have never had this before and I know it is hormone related because I had a period all this past week. I think I need something non-hormonal in my life because these past few weeks I literally felt like I have been losing my mind and going crazy!! And if you knew me, this isn’t me. A few of my friends had the same problem and are totally anti-mirena. I am going to make an appointment to get it removed. I know my body better than anyone and I know that this is the problem. I also feel not having a period is not natural because it’s the bodies wayou of flushing. If you have had a great experience with mirena that is fantastic! But I don’t think this is for me. What doctors do not tell you also is that the side effects can be depression and anxiety and loss of libido. You can go to Google and lookup the mirena packaging insert at the side effects as well. I am so glad I’m not the only one because I sure have felt like it these past few weeks 😦

    • Omg!!!! Yes I had all of those exact symptoms!!! I took mine out about 7 moths ago and it’s gotten way better but I’m still not myself 100% I had moments where I thought I was going crazy!!! It was like living in hell! And my personality is just as you described yourself! If u wanna talk email me Melipolanco@yahoo.com

  55. Have had medina since my third child in sept 2011 , ( almost 5 years ago)I have terrible anxiety , blurred vision, headaches, jaw pain , neck
    Pain, fatigue (but can’t sleep), tingling and numbness , hair loss and more.
    After a ton of doctors visits , metro specialist and mri , cbt etc I was diagnosed with Fibromyalgia but having read this and other online forums I’m starting to wonder if it is indeed the merina , really want to get it out but worrying about the dreaded crash everyone talks about is making my anxiety rage ,!
    Has anyone else had all these symptoms with Merina?

  56. Thank you for all your posts. I wish Gloria would follow up after her hysterectomy. My wife has severe Bipolar disorder, which is essentially a reaction to your own hormones effecting your neurotransmitter regulation. For the last couple of years her symptoms of bipolar worsened without a medication she could find to help. Just a few months ago, her new psychiatrist prescribed Geodon. Although way too strong a dose at first (80mg pills x2), she could tell it was the one. We reduced the dosage to 20mg x2. It’s been an incredible transformation, except for one issue. PMS still greatly effects her mood imbalances. With her age (47) her periods became very irregular. We thought a low dose birth control could stabilize these symptoms. Her Merina IUD was implanted 2 weeks ago by a OB/GYN who uses it herself. She started getting acne yesterday. She gets sharp cramping pain on her left side near her vagina and cervix. Her mood 2 days ago started getting erratic again from so happy to so irritable within hours. Hyper most would say. She hasn’t stopped bleeding since day 1 after getting the Merina IUD. Slept great last week. But the last 3 nights worse and worse until a couple hours ago waking up panicked, unable to control her breathing, sweating. She’s been saying the IUD is messing her up. I didn’t give it much thought since she just got it and needs an adjustment period to the side effects. But she couldn’t ‘wake up’ from the nightmare. Saying she was in a struggle over and over. She took her medication 2 hours early and a low dose of a sedative and got back to sleep. So, I Googled: “Can IUD cause nightmares?” And found many blogs like this…so many of you sharing what she has experienced in just 2 weeks on the Merina IUD. Her Gyno said it was not unusual to bleed so much, but to call again if it goes past 10 days. Well, it has. I did not know the Merina IUD released synthetic progesterone.
    That is what makes her bipolar worse naturally. She has meds to counteract mood swings, but you can still see the IUD has emotional side-effects as well as the physical. She had to drink more to calm herself. She cries again for no reason, which the Geodon had stopped. Her irritability will always be there, but this is different. It’s a lashing out at small annoyances and apologizing, wondering what just came over her. The nightmare/anxiety episode just now was the last straw. This IUD is coming out ASAP. I hope this helps someone else and I will follow up this post.

  57. Dear Lindsay,

    I know your original post is from quite awhile ago, but it has given me so much hope. My 22 year old daughter had a great deal of anxiety, went to doctor, was prescribed an antidepressant. That med gave her strange side effects that lead to her being diagnosed with bipolar disorder. The doctor wouldn’t listen to my concerns that her behavior was from the antidepressant.

    In my frustration, I started googling things and found your post. It made me cry. Looking back, my daughter starting with insomnia and lots of crying just a few weeks after getting a Mirena. When I questioned the doctor (who now had prescribed an anti-psychotic) about the possibility of the Mirena being the problem, they blew me off. After lots of research, and reading your post and many, many others, I convinced my daughter to get her Mirena removed yesterday. She stopped taking the anti-psycotic two weeks ago, so now just waiting for hormones to readjust.

    I’m so sad that so many women are struggling after Mirena use. Thank you for your story. It gave me hope and a drive to continue investigating. I’m very hopeful that without Mirena, my daughter will return to her normal self. I’m so angry that doctors jump to an “easy ” fix instead of thinking. My daughter has had her Mirena for 18 months, and all the bad issues with meds for the past 3 months. I just want her to feel better. No insomnia, no anxiety, her hair to grow back, no irritability.

  58. Thank you for your article! Been reading many of these lately. I have had Mirena for close to 10 years! 10 years. Every doctor has slapped me on anti-depressants that make it worse, flat out told me that I wouldn’t experience any mood stuff on Mirena, etc. I sadly have been experiencing a really bad episode this last month – there have been days where I literally cannot get out of bed. We FINALLY figured it out that it is probably the Mirena and I’m getting it out tomorrow. My family and I deserve better – but after 10 years, I sure feel crazy!

  59. Hello. I know this is super late but I just want to say I can totally relate. I have had the most miserable 4 months of my life on the Mirena. I was in a wonderful relationship which has gone to the shitter because of my symptoms. First came the libido death. I had no interest in sex or my relatonship what so ever. This scared me as I was always a sexually driven lady, and all of a sudden I don’t want my boyfriend to hold me or kiss me at all.

    Then came severe anxiety. Mind you I already had anxiety issues, but my psychiatrist thought I was bordering on OCD. I was always anxious and I could barely leave my house. I couldnt even talk to people, not even my boyfriend without being anxious.

    My concentration is death. I have adhd and I take meds for it, but after the iud I felt worse than before taking adhd meds.

    These issues got so bad I got very depressed and I had to go on a break with my boyfriend. All the stress and nausea (I could barely eat) caused me to faint in my lecture hall and I wounded up in the hospital.

    Here I am at Rock bottom sitting in my hospital bed with no one there by my side since I pushed everyone away except for a girl to helped me in class it clicked. These symptoms only came after my iud. After an intense googling session of women with similar experiences I took it out myself (I don’t recommend this, it’s your body take care of it) but it came out so easily, like my body was relieved.

    I am already feeling so relieved and optimistic. I am hoping I can resume my relationship and finish my degree. I really don’t recommend the IUD if you have pre’existing issues, it might ruin your life like mine.

    Ps I also had horrible acne and skin issues, weird discharge, hurty boobies, headaches, (I’d say insomnia but I always had this)

    • Like you, and a few other stories that I’ve read through the comments, my gf (now ex) had the hormonal iud put in around mid may. Weeks after, I had noticed that she wasn’t getting anywhere near as lubricated during sexual activity as she normally would. a few weeks to a month later and she says that she loves me but isn’t ready for a relationship. Before the IUD this girl was so in love with me as I was with her. She wanted to see me all the time, always told me how much she loved and missed me, and would always talk about future plans together. To recap: She was madly in love with me and could not get enough; All of a sudden, a couple weeks later, she tells me she doesn’t think that we should be together. No warnings and no signs of discontent with the relationship. She essentially pulled the rug right out from under my feet. We did an on again off again basically all through June. Last time I saw her was two weeks ago. She came over, we had sex and just loved each other. A couple days later, she said the same, “I don’t think we should be together.”. I told her that I thought that the hormones were messing with her, but I don’t really think it landed. So it “ended” ended last week. I love and care for this girl so much, but I just don’t know how to get through to her. I almost want to send her a link to this page but feel that it will just make me look really desperate (which I’m not). It’s just mind blowing how someone can go from “I want you in my life forever” to “I’m just not ready”, within a month, when we had no problems within the relationship. I don’t get how she doesn’t see it, but hormones are a powerful thing. So any advice on what to do? Do I send her a link to this page? Do I move on and let her figure this out on her own? I really don’t know what to do. I really love this girl and want a life with her, but how do I make her see what’s going on without seeming needy and desperate?

      • I think, at this point, you can’t really force her to do anything. Hormones or otherwise she’s made a decision and the choice of what she does next is hers alone. I’m really sorry you’re going through this. 😦

  60. I just got my Mirena on Monday and it’s Thursday today……. Tomorrow I will be making an Appointment to have it removed. 4 days and I’m already ready for it to go NOW!!!!! Anxiety is through the roof and low moods. I’m done with it!!!

  61. So so glad I found this. I feel like I’ve read every page on Google about the Mirena and I feel so angry that no one warned me of the side effects before insertion. I try to be so careful with what I put in my body that I never would have agreed to this had I known beforehand. I got my first one when I was 18 and didn’t really have too many issues that I remember. It expired and I got a new one last summer, August 2015. Slowly but surely a whole new range of side effects I’ve never experienced before began happening to my body. It was only a week ago that I made the connection to the Mirena. I’m displaying symptoms of PCOS which also happen to be side effects of the Mirena because it can push your body into that state.

    I’ve had the worst cystic acne I’ve ever seen (used to have flawless skin), I am so incredibly tired I don’t even want to go to work, I don’t want to hang out with my friends or family or even leave the house which is new for me because I’ve never been depressed, I’ve got night sweats, odd facial hair patterns, brain fog like you wouldn’t believe and last but not least two softball sized cysts on my ovary not characteristic of PCOS (smaller ones are more common) . My gyno didn’t even want to give me an ultrasound to check for cysts and just wanted to give me a couple of prescriptions. I pushed the issue saying I knew something was wrong and I was right, like I knew I would be.

    My gyno refused to take the Mirena out and instead gave me estrogen dominant birth control to try and shrink the cysts. I flew home and had my home town gyno (thank god for small towns) call me on Thanksgiving day to schedule a time for removal. I keep telling my mom I know my body and I know it’s not PCOS. I know it’s the Mirena because I’m not myself anymore at all. Hoping I feel better after the removal… I’ve been feeling so hopeless and so far from who I really am.

  62. I had the Mirena IUD inserted at the beginning of September after just finishing nursing my last child and being on the mini pill. I thought it sounded like a good idea and many friends had good things to say about it. I still had my hesitations, but figured I was being silly. I wish I would have listened! Within 2 weeks I began to show some anxiety (which I’ve never experienced in my life!) and just before the 4 week mark, I almost couldn’t finish driving to the airport to pick up my husband. I had to call my Mom and have her talk to me the rest of the way there. I had my husband drive home and I began researching. That’s when I found this blog! I called my doctor the next day and the on call doctor said that it couldn’t be the IUD and that I haven’t given it enough of a chance to work, I should wait until my 6 week appointment. That was in the morning. By the afternoon I was so sick, literally sick to my stomach and couldn’t eat anything, and my anxiety was increasing with flutter like feelings and all. I called back and said I needed an appointment ASAP to have the IUD removed. Since it was a Friday afternoon I had to wait until Monday morning. Within 20 minutes of it being removed, my nausea subsided and I could finally eat something! The fogginess in my head also began to clear. I was so grateful!

    Now, I only had the IUD in for a month, but I feel as if I’m still dealing with the side affects. I’m still dealing with anxiety off and on and occasional waves of nausea. I have 3 little ones and can’t be dealing with this. It’s very frustrating! I went to my regular doctor to have things checked out and he ran some basic blood work that all came back as normal. I went back to the PA at my doctor’s office (because my doctor’s scheduled so far out and the PA’s the one that removed the IUD) to see if they would do blood work to check my hormone levels. I was told they didn’t need to do the blood work because they already knew my hormones were out of whack because I had a baby 15 months ago and had just quit nursing and had the IUD removed, etc. She left telling me to start taking the pill and that should help. I finally caved and started taking the pill again a week and a half ago just to see if it would help. I’ve used the pill for a long time to regulate periods and such, so I thought that’s what my body might need. I feel like it’s helped a little bit, but I still am feeling some of the anxiety issues. Can this really still be from the IUD?! I called and made another appointment for tomorrow with my actual doctor (she had a cancelation! Lucky me!). My regular OB seems to be a better listener than the PA in her office, so I’m hoping she’ll take me seriously. I’m not sure where to go from here, but these unsettled feelings I’m having need to go away. I just want to feel like me again. I’m considering counseling too, because maybe it is something more than just the IUD. I’m hoping my doctor doesn’t just throw more meds at me tomorrow. I’m really hoping she will listen and help me find the source of what’s going on here, because, like I said, I’ve never dealt with anxiety before and it is not fun! My kids, my husband need me! Anyway, not sure if anyone else can relate to my story. Thought I’d share my story though. I’m glad I had the IUD taken out and I wish I’d never had it put in. I didn’t have any of these symptoms prior to having the IUD put in.

    Thanks for putting your story out there! It gave me the push I needed to have the IUD removed!

    • OH MAN. Once the IUD was out, it only took me three days to be back to normal, but it still left residual effects (like my period was regulated and I was still nursing 24/7). So I think it’s totally possible that it’s still affecting you a little bit, but remember too that postpartum life (for seriously like as long as you’re nursing and then even after that) is totally a crapshoot. And it varies from child to child. My postpartum period after my second baby was a lot different from my first (NO MIRENA, FIRST OF ALL) but I still deal with hormonal weirdness. So definitely keep exploring!

  63. As I type this, I’m seriously considering removing this thing myself. I had a liletta (same hormones as Mirena, just .19 instead of .2, 3 years instead of 5 due to lack of freaking research…didn’t know that!) placed 11/21. Since then, I have been dumped by my boyfriend (a week ago, after I lost my temper at a really inappropriate time) who let me know I had been a clingy, emotional nightmare since Thanksgiving and further triggering his PTSD, I’ve been losing my temper or crying over nothing, been unable to smile or laugh (not like me at all), lost increasingly more hair each showrt, developed painful acne, developed a nose that won’t stop peeling, had a period for what will be 20 days tomorrow, not had any sexual thoughts or need for physical attention, and been so tired I can fall asleep at any time in any location but I wake up at 3 am all the time. I tried to pinpoint what happened and realized it might be the IUD. I thought I was just bummed that my boyfriend and I were struggling. I even tried to tell myself I was just paranoid and looking for a reason to remove the IUD (I was no longer as attracted to my boyfriend by last week, which was crazy). But now I’m thinking maybe I’m not just moody.
    The IUD was placed to help with extremely heavy periods and endometriosis. The periods are terrible, but this is worse. I know I felt good before this thing but I can’t remember what it felt like. And I lost a guy I loved. And I yell at my kids a lot lately. I wake up tired and want to stay in pajamas. The only good parts are no weight gain and I am less bloated than usual. Which seems weird to me. I want to make sure I’m not just crazy. Thoughts?

  64. THANK YOU SO MUCH FOR YOUR BLOG! I had my iud removed today, I’ve only had it in for about 6 weeks. I was on the pill in 2010 after the birth of my daughter, and I experienced anxiety and panic attacks, and a lot of other bad mental experiences. So I was given the copper iud. I had my 3rd child Aug 2016, when I went to get the copper iud put back in, my OB pushed me to get the Mirina. I was hassitant because I remembered what the hormones did to me but with fear I agreed in hopes it would work for me. I was perfectly happy and find postpartum until that iud was put in me. My hair has been falling out in chunks, I was have random spurts of depression and anxiety, and I was bleeding the whole month it was in. I knew in my gut it was all from the iud. I made an appointment with my doctor, and she talked me out of it, saying there was no way it was the iud causing it, it was all from postpartum. I gave it another week and couldn’t take it any longer. I wanted that thing taken out of me asap! Even my bones and muscles felt achy. I made the appointment with my OB and even she tried talked me out of it, she said I was breaking her heart??? I wonder, why are these doctors so pushy about the mirena ?? Strange, but I am so happy to have it out! I felt soooo relieved when I left the doctors. I did just wake up in the middle of the night with a pounding chest and some anxiety, but I hear this happens sometimes after removal. I hope more woman do their research before getting the device. It’s sad to think how many woman suffer or have suffered from the iud side effects and had it blamed on depressed or postpartum 😦 sooo happy woman are spreading up. I felt so relieved to read this blog and know I’m not alone 🙂

    • I really, truly, honestly think that some OBGYN offices get kickbacks from Mirena. I don’t understand why they push them so hard otherwise. Literally I was told it was “the only option” if I wanted to breastfeed. BS!!!

  65. Hello,
    I just came across your site, and would like to share my experience. I got the IUD in September of 2016, got it taken out last week due to breaking out in HIves and allergic reactions every single night. went to so many doctors and they all said it wasn’t the IUD, well if you google IUD Mirena Hives, so many articles come up and it also lists it under the Mirena side effects. I also feel the Mirena changed my relationship as well, I have no sex drive, mood swings all the time, I snap at my kids constantly. I still have the hives 1 week after getting it removed, i’m hoping it’ll go away soon!
    Mirena is terrible!

  66. I wanted to thank you. Your article saved my life!!!! And to be honest you saved my kids. I had a c- section and six weeks later started the mirena iud. It was almost three weeks when i finally figured it out after reading your article. I went the next day and had it removed. And I am back to being my loving mommy self again. I remember the thoughts and how close I came to destruction. So I hope this reaches you in a good place in life. I wanted you to know that I am grateful and couldn’t thank you more. You gave me hope and my life back!!!! So once again thank you. Your voice was heard!!!!

  67. Great blog! Finally got my answers! Can’t wait to have the Mirena removed. Never in my life had insomnia till I got the Mirena.

  68. You have done a great service to me and apparently many. I see this post was written 5 YEARS AGO and we are still dealing with the same crap. I have to go back to read many of the comments, but I am so pissed I have to get this out. This post indeed came up in my search for “Mirena mood problems”. I’m 33 and I have never been on birth control. I was leery of messing with my body’s hormones. But I had a baby (surprise!) at the end of December 2016, and my OB suggested bc, specifically Mirena. Since I was always partial to an IUD if I did take bc, it sounded like a plan. No worries. So I had it put in in the beginning of March 2017. Here’s the problem. I am bipolar with severe mania. Been on psych meds on and off since being a teenager. Have been on my current meds for over 2 years, all is wonderful. My OB knew all this and the meds I was taking. I had to specifically go to a high risk OB bc I am on Paxil. Anyway, the doc gave me the whole perforation, bleeding side effects spiel, and the risks, she assured me, were low. And it only released a tiny amount of localized hormone, so I needn’t worry about messing up my natural ones. Within a couple of weeks I realized I just had NO energy. I was sleeping 10 hours a day and still could barely get out of bed. I was totally isolating myself from the rest of my family, staying in my bedroom all day just severely fatigued for no reason. A few weeks later I began crying spontaneously. I realized I was depressed. And my lower back, which I have herniated discs already, was just flat out killing me! So I would stay in bed bc my back hurt so bad. Then I would sleep for 10 hours, and then be up all night long. I would then cry my eyes out after a couple days of this because I was missing beautiful moments with my new son. And that made me even more depressed. I was being a horrible mother, girlfriend, everything. I felt lazy, crazy, ridiculous, and everything day in and day out was being put on my amazing boyfriend. I would hold my baby and he would look around for Daddy. The only time I got real time with him, and just us, was in the middle of the night, when I would rock him back to sleep and hated to put him down. Sometimes I would hold him most of the night, just missing him. I was an emotional, depressed, teary mess, but couldn’t do anything about it bc I was in so much pain and so freaking TIRED. ALL THE TIME. I was jealous of my bf, and felt like my son couldn’t care less about me, and he had every right to feel that way. An awful, excruciating, heartbreaking downward spiral of nothingness for almost 3 MONTHS. Then it changed out of the blue. I had energy. I was up with him and playing and doing chores and changing my weird nocturnal schedule back to normal. I didn’t realize what was going on for a while longer. For about 2 weeks I was great, then I was right back where I was again, out of the blue. Worse, bc I felt guilty and alone and afraid. I thought I was going to need a dose increase of Paxil. Then I got suspicious. I wondered if I had PPD, but I was totally fine and happy when he was born and for the couple of months after that. Which is when I realized what had changed. I had the Mirena inserted a couple months after he was born. I wasn’t sure though. I thought about it, but it didn’t really make sense that an IUD was causing this, with so little hormone in it. Then, this week, and now I’m not sleeping at all. But I recognize what is going on this time, a very bad manic episode. I’m all over the place, can’t think straight, physically exhausted but my mind is running circles around me. I decided to actually DO something and research Mirena. I did the same thing this blogger did. Read the pamphlet, had heard about Mirena, heard the side effects from the doctor, and said “Let’s do it!” I looked up the side effects. “Nervousness, lower back pain (like I needed more of that!), mood changes, loss of libido.” All of the above fit me perfectly! When it said mood changes though, my spidey senses alerted. Why was this causing “mood changes”? I looked up drug interactions, just to check the actual reported stuff before looking at personal stories. That was my a-ha moment. Tonight, after being up for 30 hours now, I saw that Mirena has a “moderate” interaction with my mood stabilizer, Lamictal. It causes levels of Lamictal in my bloodstream to diminish, rendering it ineffective. Lovely. Why in the hell didn’t my OB bring this up, knowing full well what meds I was on? Why did I have to find this myself? I kept digging and found out two other things of note that nobody ever bothered to tell me before getting this life-sucking device implanted in my body. 1) hormonal drugs of ANY KIND are not recommended for people with Bipolar Disorder, bc they may be more sensitive to their effects. 2) Seems to be the thought of some docs (on the internet at least) that since Mirena supplies localized progesterone, it may be causing the hormonal glands to stop making enough of it, even though what Mirena is supplying isn’t going into the bloodstream. Which causes a hormonal imbalance with more estrogen and not enough progesterone. Causing “mood changes”. Those seem like just opinions, but it also seems to make sense. So I’m probably full of estrogen and my mood stabilizer has been rendered useless for the past almost 4 months.

    I am so very, very thankful I came across this post. I am not alone! And I am not just losing my mind! Unfortunately, I have missed so many little special moments with my son already. But I am getting this thing removed ASAP and looking into other options, hopefully Paragard (if it’s still on the market). Hope I don’t have the problems the blog writer did with getting the doc to take it out, but I won’t rest (quite literally) until this f**king thing is out of my body! I should be awesome mom, not nervous wreck. No bc is worth this. Hopefully others will continue to find this, and think more carefully about the *real* side effects of this IUD, or if they already have it, act much sooner than I did. Don’t feel crazy and question yourself. Get it out!

    By the way, I am coincidentally constantly fueled by Diet Pepsi!

    • OH MY GOSH this comment makes me so angry on your behalf! I am so sorry you’ve gone through all of this! But I’m so glad you’re gonna get this devil device out of you. Praying for a quick and effective recovery so you can enjoy your beautiful new baby boy! (And cheers to the Diet Cola girl.)

  69. I could have written the initial story except when the went to remove my IUD it had already shredded my uterus and they did a hysterectomy while I was under. I was 35. My husband passed away shortly after and I remarried a few years later. I would have loved to have had the option of having another child. This product damaged my body and took away a year of my life due to the side effects. Please stay away from it.

  70. I know this original post is old but I am so scared. I had a bout of anxiety a couple of months ago. I have been trying to bounce back from it for months now. Going to this Doctor and that Doctor because of severe headaches. I had been going to a neurologist who sent me to Physical therapy for headaches…long story short I went to the OBGYN for my yearly check up (well first time I have been in 6 years). I explained to her what had been going on with me and that I had lost over a hundred pounds in the past year (on purpose). So she suggested that my hormones might be out of wack. She said she would treat me the same either way regardless of testing my hormones first and suggest putting an IUD in. That it would help my anxiety and headaches and any mood swings and horrible periods that I had. She told me we would kill 5 birds with one stone. I was so excited and had my IUD put in last Thursday. 5 days in I haven’t had any symptoms…until last night. I was completely just overwhelmed, my headaches came back with a vengeance, my mind would not stop. I tried to go to bed and sleep it off. I fell asleep for an hour only to be woken up by an anxiety attack and feelings/thought I have never had before and I couldn’t fall back to sleep. Could these side effects show up that quickly? I have a call into my OBGYN but I have a feeling she is going to tell me that it has nothing to do with the IDU… Should I have it removed ASAP or give it more time?

  71. I only had mine for 5 weeks before I got it removed. I started having anxiety and panic attacks and would wake up multiple times in the night with my heart racing. It’s been 5 days since I’ve had it removed and might be a tad better but anxiety and heart racing is still there. I have never struggled with this before in my life. Please tell me I’ll be back to normal soon. I can’t stand feeling like this!!

  72. Omg this shit has happened to others too. I got pregnant twice with copper coil so I had no choice but try the hormone thing, and they put Mirena inside me. That was 8 days ago. 2 days ago I started having sudden needs to cry for no reason. And yesterday night I basically raped my boyfriend :/ With my natural hormones I’m a very kind and soft lady and not dominant or aggressive at all. I feel so ashamed and I’m going to get this thing removed asap. Everything feels so weird.

      • Got it out today! Female sterilization, here I come. (I have 2 kids aged 15 and 17 and I’m 41, bf has 3 kids and I think totally 5 kids is enough.)

        For those who are searching alternative contraception, try copper coil. I was perfectly happy with it until I got pregnant with that thing. But that’s extremely rare. I just get pregnant very easily.

        The day after I “raped” my boyfriend he brought me chocolate ❤ But as I've read here, even the best men don't put up with mood swings forever. I'm so sad for all the broken relationships just because this awhul device ;(

  73. Hi Everyone

    I cannot believe i was so stupid and was looking for answers for almost 5years. OMW!!! Maybe it is the IUD maybe it is not… but as far as my eyes can read WOW let me tell my story…

    I had to remove my IUD on Monday the 11th via a laparoscopy and then a laparotomy procedure as it somehow moved or was inserted in my abdominal belly.

    I was on contraseptives all my life and decided to have a child. I gave normal birth to a 3.2kg babu boy in January 2010 with no complications whatsoever.

    Before i begin i also just want to mention that three years of my life in school since Std 9 till 1 year (1999 till 2001) out i was a total freak out and rebellion. But in 2002 i knew life is ahead and since then i was very proud, comitted, happy-go-lucky and determined in everything i did and in a good healthy relationship for 5years and then got married. I was a pharmacist assistant and worked in the same pharmacy for 9years. My brother passed away in 2002 and my mom in 2004. The reason why i am mentioning it you will hear of later…

    Umfortunatelly I got devorced in 2011 and as it is I decided to insert the Mirena in 2012 just as a contraceptive, not knowing the side-effects or risks. It was a easier and cheaper contraseptive at that time. I do recall the gynea who inserted it was new to me as well as the pain was so bad that when I walked out of the doctor’s rooms to the hospital entrance. i fainted of pain, as I did the prosedure in his chair.

    Everything was ok and I did not realize at the time that everything I went through from that time was actually side-effects. I can start off by saying I had my periods every month from then till now.

    I met a guy 5 years younger than me in this time, easy to remember i would not know of the insomnia, as i was use to get up at night to feed my boy and when my boy went to his dad, it was no problem for me to party the night through. Unfortunately with all my emotional trauma i had been through like my mom passed away, my brother and i got divorced, had to start all over again with my little boy, i was ashamed of the divorce, i was sad, actually emotionally i was a disaster… so i started using “cat”. At that stage it was only a party drug on weekends when i was free. Although i did that i started with a newfantastic job as a pharmaceutical sales rep. Very good salary, benefits as such that i could survive on my own as well as have a very good lifestyle for my son.i performed so well in 2013, i actually won rep of the year award. But then i started lacking in confidence, partying, drinking (i never use to drink). I became emotional depressed, i started moaning about my relationship and became very erational. And there was very long periods that i didn’tuse drugs, i did not crave it at all. And one evening i just decided enough is enough and i broke up with this guy although he was a very good caring person to meand my boy, i could not stand the fact that he is not working and i always had to feed etc.

    I went to a house party, but now you must know i went through anotherbreak up, things at work is so-so, i am sitting with a crap load of debt and i am single, my boy is teething and i am so tired. Not expecting any male spesie to be interest in me, i got myself interested in this 9 years older than me guy with LOTS of energy and a shit load full of money, which i did not really know. All i knew is that his x-girlfriend were like 11 years younger than him and she was a babe!!!

    The more we socialised the more i discovered this oak drink like everyday, but not knowing he is ADHD and that is why cause he cannot sleep, everytime we go out i have to use cat to stay awake and do not get drunk. Sort of common as most his friends were also using it. So on the first night me and him finished a lot of red wine, this guy was ment for me, ashe understood each and every little traumai went through in my life and also has pretty much more emotional disoriantated life than me. But i could tell himevery detail and insteadof judging he was really listening. So in month 2 of our relationship i ended up in Jacaranda Hospital in the psychiatric hospital for 21 days with major depression, keep in mind although i was using substances i was never hooked on it, as all except the doctors said that this is not my problem. And everyday i got a visit from my partner currently which i have been with almost 5 years now. Unfortunately after 5 years my company ask me to resign as my condition were disapointing.

    4 Years of living hell, on drugs, of drugs, erational behaviour, very agressive towards him, depression, insomnia, vandalism, panic attacks. After i almost killed my partner in 2015 iwas admitted to Glynnview Psycoatric Hospital AGAIN for 21days. There i was diagnosed with bipolar depression and put onto Mood stabilizers, sleeping tablets and anti depressants. I eventually got sort off fired at my second medical rep job so the disappointment in myself were enourmous.i was a disapointment to everyone, at that stage i didn’t have any self-confidence selfmotivation. So i decided to stay home for a while and get better. At this i did not really have anyfriends left was a dispointment to my family and the one i love. I have been to my psyco therapist sessions as scheduled every month that he does not really haveanything to say anymore exceptto give my repeat prescription for all my tablets. So now i am starting to question, if i dealt with almost allmy personalemotional intelligence, i have been of drugs for several months, taking my meds everyday but nothing seems to work. I decided to go my religious wayandturn my life around toGod, surprising to say at the third session of my weekly visit at the church, they are starting to pick up there is something wrong in my abdomen, they are starting to pick up and pray for pain, insomnia, any drug issues, emotional depression, headaches,backpains etc. And it was then i decided i need togetthis thing out as it is anyway in it’s expiry year. I immediately made an appointment to go see my gynae.

    Visit one in rooms: he couldn’t pick up that i have got a IUD in.
    Visit two in theatre: he could not retrieve it as it shown it has moved. I have to go for x-rays

    After about a year passed, i got a rep job again in a well known environment in September 2017. Trying so hard everyday to be positive, be comitted and be happy, i finally decided to take my holiday time to gointo theatre to be booked off for two weeks for a exploratory Laparoscopy, possible Laporotomy. I am currently at home recovering from a laparoscopy and laparotomy before i take 2018 as a new challenge.

    Maybe this is not the answer of my past 5 years of depression, almost suicide, almost losing my child, and lost of own humanity…. something, somewhere did go horribly wrong, i know in my heart this is not me and does not want to be. As my mom always use to say you are a “flowery happy child”

    I have to built my life AGAIN on 35 to being GREAT! The only way i will possibly find out was to remove my IUD, if this is it i can be that happy-go-lucky successful woman with nothing to be ashamed of except a learning curve on addressing a possibility of nativity immediately and not always have one conclusion as for first giving my life the blame for my drug usage or my drug usage for the depression. Sure it is also possible, but after your post and actual studies and actually spending time on myself, anything is possible. Is it a case to study my past 5 years or is it just daily life i cannot cope with?

    My feeling about the IUD… it is not natural, it was a living monster living inside of me and i had TWO surgeries to show it.


  74. 6 years after you posted this article it’s still in the top searches. Thank you so much. I had mine put in December 2013 thinking it’d be SO great to not have a period. An OBGYN gave me the NuvaRing a few years prior and told me to leave it in for 4 weeks then put another in so I wouldn’t have to menstruate because “you don’t need a cycle unless you’re trying to conceive”. Please explain to me why it’s ok that your reproductive system isn’t working? Well anyway, I thought it’d be awesome to not bleed for 5 years. The first 2.5 years I’d wake up in the middle of the night with horrendous cramps. 2 years in and I thought I had IBS because I ate some Brussels sprouts and my stomach was hugely bloated and painful for 2 weeks and wouldn’t go away. The doctor gave me an anti-spasmodic and it went away. The list of foods I couldn’t eat just increased. However this persisted until I just had it removed 4 days ago. I’ve had so many headaches over the last 5 years I should have a Motrin sponsorship. For the last month my left eye twitched all day every single day until the Mirena was removed. A fucking EYE TWITCH! I’ve had so much horrible destructive thinking I thought I was super depressed or bi polar. When I got it removed the OBGYN was like “yeah some people love it and some people hate it” yeah it’s not worth not having a period. Now I’m going hormone free, my husband is wrapping it up and now we can have sex without his D getting scraped up. And I’m looking forward to healing my body. Doctors are ridiculous.

  75. Reading your article was like experiencing deja vu for me! YES! I just had the worst 4 months of my life and finally realized a few days ago that it was because of my IUD!!!!!!! Got that thing out ASAP, and guess what– I feel like myself again! 😀

  76. I had the Mirena in since January 18, 2017 today is November 14, 2018. It has been almost two years of sadness in my soul and struggles with everyone close to me. I was depressed, anxious, my hair was falling out, nausea, acne, forgetfulness, and moodiness like nothing I’ve ever known possible. I don’t know how my loved ones didn’t hate me. I hated me. I would cry or yell, then I would want to hide because the crying or yelling was ridiculous. Then I would feel ashamed, and want to cry more. I couldn’t seem to snap out of it.

    After enough was enough, I had cried for about 2 days straight for no reason at all, my fiance and I both woke up on 11/4 with the same thought- could this be related to the Mirena? Because I’m not myself any more. Luckily my annual appointment was that following day, 11/5. After a few quick internet searches I decided that morning this thing was coming out.

    I mentioned it to my doctor and she said “it’s unlikely that it’s related, it’s a small percentage of people that have these side effects.” So I asked her if many of her patients complain of these things and she said no… then I followed up with “so does it make sense that I would be in that small percentage?” She took it right out, no questions asked. Then I got home and wondered if I had it removed in haste so I did some more internet searching and stumbled across this blog. I read comment after comment after comment about the disastrous effects of Mirena, and I knew I made the right choice. I was going to post right then and there but I decided to give it some time to see if things turn around.

    So, 1/18/17 it went in, 11/4/18 it came out. Today is 11/14/18, 10 days later. I feel like 50 lbs has been lifted! I’m not even kidding- even my son and fiance said I seem like I’m feeling better. Today I am beginning my first period since it was inserted. I didn’t have insomnia, but I am sleeping better. My mood is lighter, I am laughing more, I am less likely to want to hurt someone for looking at me. I have hope again. I am so so so glad I got this thing out of me.

    I know I have some “fixing” to do… the way I treated people I loved (or didn’t even like), makes me think I was a monster! There is definitely some repair work to do, but I tell you what- with that thing out, I feel so much better than I did. This stuff is no joke! What an absolute nightmare.

    Thanks for sharing your story and letting all of us come together to give anyone else that is struggling some hope that things can get better for them, and the courage to take the Mirena out!

    • WOW. Thank you SO MUCH for sharing your story, beginning to end. I’m so grateful you’re feeling better and that you found validation here. Praying for continued healing!!

  77. Thanku for posting this I have been thru a ringer and need to tell you my story. I had my first mirena put in November 2012, 4 months after having my 3rd child, I was breastfeeding and continued to do so until my son was 2.5years old. I didn’t notice any Ill effects the first one I had in, perhaps because of the hormones due to breast feeding. I got this mirena removed in November 2017 and a new one inserted. The pain during the removal and insertion of mirenas was absolutely horrendous. I cried out loud and my whole body was racking with sobs. Gyno looked at me like I was insane. I had been suffering on and off with insomnia over this period but thought was due to my son being a bad sleeper, he has asd. After the insertion my insomnia got worse dramatically, I was using sleeping pills and even drinking wine most nights to give them a kick. Some nights not sleeping at all, some only a few hours. Doctor kept handing me scripts for sleepers and I kept taking them. I started growing facial hair and had bad acne on the sides of my chin and between eyebrows, I didn’t ever have pimples that bad when I was a teen. I made it thru Christmas and New Years some how, but by the end of January 2018 i had a complete emotional breakdown. Not sleeping a wink, worst anxiety I’ve ever felt, scared out of my wits, the runs every morning lost 6 kilos, horrific chest pains. In and out of Emergency of course they found nothing wrong. Then a doctor at hospital gave me an antipsychotic (which she told me was phenergan) I took one with a sleeping tablet and woke up feeling ok, after that I got better, although I was weakened for several weeks afterwards but then I came back to normal and just thought that was it. After this episode the chest pains continued thruout the year I have had every test from bloods to mris. All come back normal, except I have been estrogen dominant. I asked my doctor if I should have mirena out and she said not while your estrogen is so high u will bleed for weeks, so I left it in. I’ve been struggling with insomnia and anxiety all year and have withdrawn socially, and some friends are distant because I have changed. In November of 2018, the insomnia started to spiral out of control again until I had another emotional crash, the same as earlier in the year, but this time it’s ongoing, it’s now January 2019. I have been to hospital 4 times, discharged after finding nothing, mris, ct scans ect. Horrific anxiety unable to work, no sleep without sedation and even then sometimes none. Tried CBT sleep hygiene the works. Went to psychiatrist who put me on mertazapine a week ago said it would help me sleep. Nope! Didn’t help so up went the dosage. Still didn’t help so gave me a script for seroquel! Didn’t put me to sleep so wanted me to take a higher dose. Then my doctor prescribed me rohypnol to help me sleep! I didn’t do either and stopped the mertazapine yesterday, only had a sleeping tab last night and slept 5 hours. Today while waiting for another mri, I decided to google mirena and insomnia and found this post! I burst into tears reading it, went home, read it to my husband who then cried while I broke down reading it out loud to him. I am utterly devastated to think of what I’ve been through, to see this and wonder how doctors don’t know or care about this. I have no quality of life right now, it has effected my job, my family and my life. I was a happy busy mum, a runner, ran half marathons every weekend, now I am a shell to scared to leave my house. I am so greatful to you all for putting out your truth on this. I am so sad we blindly believe doctors that these products are safe. I’m so angry with myself for not thinking to look deeper into it before I agreed to get it done. I called my doctor today and she says she is waiting to get my blood test back that was done today (about the 20th in a year) before she’ll agree to remove it, I guess she’s worried about the bleeding..Strangest thing is both times I have had these crashes my estrogen was lower around 290… in July was 2150 then dropped to 1020 at the start of November now is back around 270. I will be getting it out weather my doctor agrees or not. I will repost hopefully feeling better soon.

  78. Summer68, I actually have those same exact symptoms! Extreme loss of interest in bedroom fun! It’s just soooooo not fun anymore. Hate it . I too am gaining weight. Last 4 pregnancies I had I weighed the exact same…215 when I got pregnant and 216 after pregnant. Wasn’t till I got the mirena 2 years ago that I’ve gained 15 pounds.

  79. Thank you so much for your article! I have only had mine for 3 weeks to the day and have never felt so anxious or hopeless in my life. Not even with the baby blues! My sleep is a mess too. I am calling tomorrow to make an appointment to get it out!

  80. I had a similar experience late 2018/early 2019. I had the Mirena put in and within a couple weeks, started to have severe insomnia, anxiety and restlessness. I couldn’t relax or unwind at night to sleep. It was AWEFUL!!! I had had similar symptoms for a few months post-partum (also when your hormones are out of wack, breastfeeding, which blocks estrogen, and when taking the progesterone only pill!!) so it really scared me to think 8 years later, I was back in that same scary awful exhausting place. I persisted for 2 months. Went on an SSRI, took sleeping aids, nothing was really helping that much. I finally decided to take the bloody thing out (no pun intended!) 2 weeks ago and literally within in 2 days, I felt back to normal, was able to sleep, and to feel calm again. Before I had it removed, I did see the post, and I thank-you so much for it!!! it saved me from an even longer period of suffering. I have many close friends who use Mirena with no issues at all, save a bit of weight gain, but for me, this was a disaster. NEVER AGAION!!

  81. Yes I really and grateful I found it! Thanks very much to you, I did my research and just knew this was what was going on. I hope more women find this!

  82. Holy shit!!! I’ve had mine in for three years and just recently my friend asked me If maybe all my symptoms were from my birth control so I decided to do some research.. glad I stubbled across this article. I’ve never had acne and the past 3 years I’ve had the worst ever which results to more makeup being worn which doesn’t help and me not feeling great about myself. I also have insomnia and have tried all the sleeping pills out there which can get me to sleep eventually but forget about staying asleep which results in me being tired all of the time and coffee does nothing at this point. And the most recent symptoms is my anxiety that I’ve always had has shot through the roof literally about everything…. I love not getting my period and I’ve read scary things of getting off the Mirena I just don’t know where to go from here. I used to get the shot and loved it but now I’m scared of the symptoms. Right after I got the Mirena I gained the most weight I have had and I can’t believe I didn’t put it together!

  83. 43 and had it put in for thick uterus. Married with four teens. Happily married until 5 weeks ago. I have been moody, obsessive, RAGING, crying—-I told my husband I wanted to leave and live alone in Europe! Depressed, no happiness or motivation. Dark. I called my doctor and she told me it is not the Mirana. It stays local. No way. I’m nuts, but not crazy. I throw things at the walls. I mean, it’s BAD.

  84. I am SO glad to see there is finally some discussion on this terrible product the past few years. I am late to the game because I had Mirena several years ago when it was still somewhat new but I just saw a commercial for it and decided to look into whether or not others had my experience, so here I am. The Mirena seemed fine at first but after several months had terrible mood swings and became depressed. I thought I was going crazy – I couldn’t figure out why all of a sudden I couldn’t hold my emotions together. I finally made an appointment with my GYN who told me there was “no way” the Mirena was the problem. I left the office and let it go awhile. I looked for research on the internet – at the time there was no information stating these problems, my research was showing only limited side effects and none were related to mood and depression. I finally decided I had to try something and insisted the Mirena be removed. They actually tried to talk me out of the removal but I was so irritable I was fairly snarky with the nurse and Dr. so they removed it. Within a few days after it was removed I was back to my happy, normal self. Please all, DO NOT let a doctor tell you there is no relation between Mirena and these mood swings, we know our bodies and we need to advocate for our best health.

  85. Unfortunately my symptoms have not subsided after getting the Modena removed. I’ve had horrific insomnia since I last posted, my hormones are still a mess and drs keep saying they can’t help. Even psych drs think it’s hormonal cause nothing they prescribe helps. Some days I feel like just ending it all. But my family needs me. Seeing a female endocrinologist in January who I’m praying can help. I’m a year in now. Horrific. My naturopath suspects the removal shunted my endocrine system so badly it’s thrown everything out of whack.

  86. Today I had my 2nd Mirena IUD removed. I battled PPD without the Mirena. Nine years ago, I decided to choose this route as birth control. Totally recommended by my family dr. These same years, I am battling mental illness and extreme depression. I would continuously ask was the IUD contributing, even causing the depression. No was always the reply, there is not enough hormones to do that. It had been suggested by friends who had a terrible experience with the Mirena. I always disagreed because of experiencing depression previously.
    I had to start to see a OBGYN for other reasons, it dawned on me today to ask him the same question. He was honest and surprised me with his answer: yes, he said. That is quite possible, especially if I was prone to depression. It can mimic having PPD. (Wow) He gave me about 5 minutes to decide, stating, if no difference I could always replace it. It is difficult for me to make decisions, I prayed about it…I was getting take it out, take it out. So I had it removed. I am anxious and curious how this will affect me on so many levels. But if it relieves trying anti-depressants after, anti-depressants. Therapists, hospitals, institutions, this could be life altering. I have decided to journal about the effects. I hope and pray that this is an answer to many prayers. Maybe a future protesting spokesperson.

  87. Thank you for posting about your journey! I’m in a kinda similar situation. Started using mini-pills in August last year. Used them for three months and my mood was high and low and all over the place. Also bled the whole three months. Talked to a doctor about this and she recommended the Mirena Coil. At first I felt a bit scared since me and hormones don’t work together. I have tried Nuva ring, yaz and the mini pills.. but ofcourse the doctor kept selling me the idea of mirena and since I was desperate to get a stop of the bleeding I gave in.
    Had mirena fitted 15 October 2019. A week after that the symptoms began to show. At first I lost my breath wery easily (sorry for my English, I’m from finland) then a week after that I started to get panick attacks . In the end of November I couldn’t sleep anymore because I thought I was dying.
    Went to the doctor and they took blood test and heart film and even sleep apnea tests, all came back good. Started to see a psychologist but that didn’t help either… then one day I started to think about my life and try to figure out where it all went wrong.. and noticed that it had started after mirena! Booked a time for taking it out and got it out 17 December. The rest of december went by and I started to feel better and better.
    Now it’s the end of January. Had my first period since mirena 15-20.1 then came 22.1. Had the worst attack ever. It lasted 4 days! I still feel foggy and overwhelmed sometimes. But my doctor told me it can take up to 6months for hormones to level.. I really hope it’s sooner than later because it feels like I’m losing my mind around this. I have 2 beautiful daughters (2&4years old) and they really need their mom back..

  88. Has anyone had there Mirena taken out and still feel off years later? I feel like Mirena messed me up big time.

  89. Thanks so much for sharing your story!
    I had a similar experience with a Paragard IUD and after being shocked by how many thousands of other people have a story to tell, I started the IUD Awareness effort. It is a hub for finding out about stories that have been shared, efforts to inform other people, ways to report and take action, news stories, etc….
    I am going to add a link to your post on our Personal Stories page.

  90. I wish I would’ve seen this 5 years ago when I got mine put In, I’ll be 19 in may and over time I’ve realized how much my body and literally everything has changed. I honestly wish I would’ve read more about side effects and all the other BS that comes with the mirena. I actually called my gyno yesterday to get it taken out Bc I want to be myself again. I’m so tired of all of it

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